This week we meet Eve Whitley, our new Admin Assistant. Eve started just this week, and will be helping Lesley and the rest of the team to support all of our patients. This is your chance to get to know her a bit better. What were you doing befo..Read More >
Eurordis has recently launched a campaign and petition to make 2019 the official European Year for Rare Diseases. Sorsha joined their webinar to find out more about the campaign. In this week’s blog she talks about what she learned, and why..Read More >
For our patients who are on the drug nitisinone, keeping to a low protein diet is very important. In this week’s blog we introduce you to a helpful website, where you can find a great low protein seasonal treat to make at home! Adapting..Read More >
We are sad to announce that Robert Gregory, co-founder of the AKU..
We had great fun at our last patient workshop at Alexandra Pa..
On Thursday 16th October we will be holding our eighth Intern..