2 weeks ago, we attended the genetic alliance conference, where we celebrated all the work Genetic Alliance UK have achieved over the past 25 years. The director, Alastair Kent started the day with a history of Genetic Alliance. He talked abo..Read More >
The SHCA is a coalition of patient related groups and corporate members with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care. They usually meet quarterly, but this month they held two ad..Read More >
Angela is a Masters student at Imperial College in London. She is studying Science Communication, and for her dissertation she has decided to research our very own DevelopAKUre clinical trial. In this week’s blog Angela tells us why she finds o..Read More >
On Tuesday 21st July we will be holding an online webinar about t..
On Sunday 13th September the AKU Society team will be embarking o..
We are holding a raffle, and tickets are on sale now! If you woul..