With Rare Disease Day just three days away, we are already getting ready to campaign, celebrate and raise awareness. In today’s blog we explain what Rare Disease Day is, and how you can get involved. Awareness Rare Disease Day (htt..Read More >
Our crowdfunding campaign on Indiegogo has been officially launched. We now need your help to hit our $30,000 target before the end of March. In this week’s blog we let you know how you can help, and where your money will go. Our new campa..Read More >
On Tuesday 17th February we will be launching a new crowdfunding campaign on Indiegogo! In 2013 we raised over $100,000 thanks to your generosity and support. In this week’s blog we explain why it is time for another campaign. In just 6..Read More >
We are launching an exciting photo competition to run alongsi..
The AKU Society and Genetic Alliance UK are hosting an even..
We are sad to announce that Robert Gregory, co-founder of the AKU..