Connect with others affected by AKU

Connect with other AKU patients and caregivers like you in our free online AKU community.

A National Treatment Centre

Find out about the Robert Gregory National Alkaptonuria Centre, the first ever treatment centre for AKU patients.

This year, we are conducting clinical trials of nitisinone, the world's first potential treatment for AKU.

This year, we are delighted to have received a grant from Jeans for Genes.

A chance to meet others with AKU. We’re excited to announce that .. more...

Help us raise money for our charity online - You can make a difference with every single donation...

and volunteer. There is so much to do in our organisation - the more hands on deck the better!

now and we will keep you up-to date with information about events and research during the year...

Company Registration: 4814120 / Registered Charity No: 1101052