Connect with other AKU patients and caregivers like you in our free online AKU community.
More than 110 years since it's discovery, we're trialling the world's first treatment for AKU. Find out more.
Find out about the Robert Gregory National Alkaptonuria Centre, the first ever treatment centre for AKU patients.
Help us raise money for our charity online - You can make a difference with every single donation...
and volunteer. There is so much to do in our organisation - the more hands on deck the better!
now and we will keep you up-to date with information about events and research during the year...
Company Registration: 4814120 / Registered Charity No: 1101052