AKU Blog

  • AKU Society upcoming events in Winter 2019

    Date: 12-Sep-2019

    It's another busy few months here at the AKU Society. We are travelling all over Europe to represent AKU patients and learn new skills at various events from Gothenburg to Barcelona. This week's blog looks at where we will be and why. September Cambridge Rare Dise.. ...more

  • Get Involved In Garrod Day 2019

    Date: 06-Sep-2019

    It’s that time of year again; our annual Garrod Day Coffee Morning is on the 25th of November. Sir Archibald Garrod was an doctor who first described AKU as an inborn error of metabolism and noticed it was inherited in 1902. He had a childhood interest with colour variations, and he to.. ...more

  • In Memory of Ann Kerrigan – AKU Champion

    Date: 28-Aug-2019

    We are very sad to announce that Ann Kerrigan passed away last week due to complications during heart surgery. Ann has been involved with the AKU Society for as long as we can remember and was one of the first people to attend the National Alkaptonuria Centre (NAC) in 2012. Ann was al.. ...more

  • Meet Maria - AKU Society Student Placement

    Date: 23-Aug-2019

    Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of London, (http://https://www.royalholloway.ac.uk) where I study Psychology. I come from Madrid in Spain, but I have been living in England for the last two years of my life. During these two years, I ha.. ...more




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AKU Blog

AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019
12-Sep-2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more