AKU Blog

  • Rare Disease Day 2019

    Date: 14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events happening internationally. The AKU S.. ...more

  • Cambridge Half Marathon 2019: On the Day

    Date: 08-Mar-2019

    Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They raised a remarkable combined total of £651.82. Our fundraising officer, Juliet, was there on the day and told us more about how the day went. Unfortunately, it was a cold and wet day for our .. ...more

  • Cambridge Half Marathon 2019: Meet the Runners

    Date: 22-Feb-2019

    The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roads of Cambridge for the for AKU Society. In this week’s blog, we will introduce you to two of them. Our runners have been training hard, and they are all raising vital funds for the AKU Society,.. ...more

  • Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019

    Date: 15-Feb-2019

    The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena. We were not, however, there to view the incredible renaissance architecture or sample the lovely Tuscan wine, although we did try. Instead, we attended the final project board meeting of DevelopAKUr.. ...more




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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more