AKU Blog

  • DevelopAKUre SONIA 2 - Update

    Date: 12-Dec-2018

    We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patients. Both Hôpital Necker – Enfants Malades (http://hopital-necker.aphp.fr/) in Paris and The National Institute of Rheumatic Disease, Piešťany, Slovakia, have now completed seeing A.. ...more

  • Garrod Day Coffee Morning 2018 - On The Day

    Date: 28-Nov-2018

    Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod’s birthday. Garrod Day is a day coined by the AKU Society; this is our fourth year celebrating Sir Archibald’s birthday. We celebrated it on the 26th of November this year as his birthday .. ...more

  • Sir Archibald Garrod and Garrod Day 2018

    Date: 01-Nov-2018

    Garrod Day is quickly approaching. It’s a very important day in the history of alkaptonuria (AKU). In this week’s blog we celebrate all of Sir Archibald Garrod’s fantastic achievements and discuss how you can make an impact by hosting your own coffee morning for Garrod Day... ...more

  • October at the AKU Society

    Date: 25-Oct-2018

    The AKU Society has had a hectic month. In today’s blog, we hear about what each team member has been up to. Our Fundraising Officer, Juliet, and Patient Support Manager, Lesley, were both in Glasgow for the Findacure (https://www.findacure.org.uk/)Showcase on the 10th Oc.. ...more




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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more