AKU Blog

  • A big thank you to Pedwar Pawen Dog Training Club!

    Date: 14-Jun-2017

    Support often comes from unlikely places, but it is safe to say we never expected to receive a donation from a dog training club in North Wales. We would like to say a huge thank you to the Pedwar Pawen Dog Training Club (https://www.facebook.com/pedwarpawen.dtc) for donating £2.. ...more

  • Presenting National AKU Centre Research at an International Conference

    Date: 07-Jun-2017

    This week’s blog comes from the team at Costello Medical (http://www.costellomedical.com/). They recently presented an incredible poster of National AKU Centre research at the InSPiRe (Innovation in Small Populations Research) conference. (http://www2.warwick.ac.uk/fac/med/news/eventscal/i.. ...more

  • EURORDIS Membership Meeting 2017, Budapest

    Date: 31-May-2017

    On the 19th- 20th May, Oliver and Ciarán travelled to Budapest to represent the AKU Society at the Eurordis - Rare Diseases Europe (http://www.eurordis.org/), membership meeting. The annual event brings together patient groups from all over Europe for its annual general meeting and a day .. ...more

  • RCN Congress 2017

    Date: 25-May-2017

    The Royal College of Nursing Congress is held each year to bring together over 4,000 nurses. Coming from a variety of areas to develop and learn nursing best practice, it is the biggest nursing event of the year. This year’s Congress was held in Liverpool at the ACC Liverpool from .. ...more

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AKU Blog

A Step for a Step…Everest Base Camp Climb!

So, myself (Hannah from the gait lab) and my friend Steven have decided to take on the chall.. ...more

First Children's AKU Workshop

On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Z.. ...more

Farewell from Rory and Robin

In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures.. ...more

Meet the patient - Antony Kelly

In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell.. ...more

Farewell from Oliver

Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At t.. ...more