AKU Blog

  • Introducing Juliet: Fundraising Officer

    Date: 05-Sep-2018

    In this week’s blog, we meet Juliet, our new Fundraising Officer. Juliet will be involved in apply for funds from trusts and foundations along with organising exciting community events. All to support the vital work the charity does to help patients with AKU. .. ...more

  • Findacure Cambridge Showcase 2018

    Date: 29-Aug-2018

    In 2012, AKU Society CEO Nick Sireau (http://www.akusociety.org/new-trustees/nicolas-sireau-chairman-of-trustees) and others founded a charity called Findacure (https://www.findacure.org.uk/). Findacure helps rare disease patient groups get off the ground. The hope is that all can enjoy the .. ...more

  • Recipes Wanted

    Date: 22-Aug-2018

    This summer, we are looking to update our AKU recipe booklet. We invite patients to send in their favourite recipes, which we will adapt and add to our collection. If you have any ideas, email Lesley at [email protected] The National Alkaptonuria Centre (http://www.akusociety.org/aku-na.. ...more

  • Duncan's Decade on Nitisinone

    Date: 15-Aug-2018

    The newly published results of a study held at the National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pi.. ...more




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DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more

Garrod Day Coffee Morning 2018 - On The Day
28-Nov-2018

Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod&.. ...more

Sir Archibald Garrod and Garrod Day 2018
01-Nov-2018

Garrod Day is quickly approaching. It’s a very important day in the history of alkapto.. ...more

October at the AKU Society
25-Oct-2018

The AKU Society has had a hectic month. In today’s blog, we hear about what each team .. ...more

Stand Up For AKU Comedy Night Spectacular!
10-Oct-2018

Last week we held our third annual Stand Up for AKU Comedy Night in Cambridge, at the snug a.. ...more