AKU Blog

  • DevelopAKUre - A History

    Date: 02-Aug-2019

    Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in 2003 that I sat down with Robert Gregory, Prof Alan Shenkin and Prof Ranganath in an office at the Royal Liverpool University Hospital (https://www.rlbuht.nhs.uk/) and discussed where we wanted to go.. ...more

  • SONIA 2 and DevelopAKUre - Results

    Date: 23-Jul-2019

    We are delighted to announce that all the data from the SONIA 2 clinical trial has now been analysed and very positive trends have been highlighted. Due to this, SOBI (Swedish Orphan Biovitrum) announced that they are going to apply to the European Medicines Ag.. ...more

  • Sociological Study on Treatment for AKU in the UK

    Date: 19-Jul-2019

    My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK healthcare. The study is sociological which means it will focus on the way AKU and relevant treatments are understood and approached. It is not a medical research study which could affect your clinical c.. ...more

  • Other Ways to Give to the AKU Society

    Date: 04-Jul-2019

    In this week’s blog, we explain how you can donate to the AKU Society through mobile giving, online shopping, payroll giving and Facebook Donation. There are many different ways to give to us, each designed to make the experience as easy as possible. Text Giving .. ...more

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AKU Blog

AKU Patient Workshop 2019 - Garrod Day Special

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more