AKU Blog

  • Osteoarthritis and AKU

    Date: 16-May-2018

    Osteoarthritis is a very common joint disease. When cartilage and underlying bone in the joints break down, sufferers can feel pain, stiffness, numbness and swellings. Fingers and thumbs are most often affected, as well as the neck, lower back, knees and hips. Worldwide, 237 million people h.. ...more

  • Second International Workshop (April 2018)

    Date: 02-May-2018

    April 23rd, 2018 was St. George’s Day. For us, though, it was the start of our second International Patient Workshop. This brought together 89 people – AKU patients, supporters, researchers and staff – from around the world to network and share advice. Patients came from as.. ...more

  • Scientists for a Day: AKU Outreach in Italy

    Date: 18-Apr-2018

    The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://www.developakure.eu/), the international consortium which we put together in 2012 to find a treatment for AKU. Although there are no clinical trial sites in Italy, some of the most important scientific .. ...more

  • Findacure: Communication and Rare Diseases

    Date: 11-Apr-2018

    There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU. Together, they affect 3.5 million people across the United Kingdom. Each individual disease, though, only has a small patient population. Because of this, doctors, researchers and the public tend to.. ...more

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AKU Blog

Vacancy: Fundraising Officer

We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vac.. ...more

Meet the Patient: Selena from ALCAP

ALCAP (http://alcap.fr/) (Association pour la Lutte Contre L’Alcaptonurie) is our Fren.. ...more

Google Ad Grants

Have you noticed the adverts which appear at the top of Google search result pages? They are.. ...more

The Edinburgh Half Marathon.

The Edinburgh Marathon Festival (https://www.edinburghmarathon.com/) is the second biggest r.. ...more


The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing serv.. ...more