AKU Blog

  • SONIA 2 - Last patients

    Date: 22-Jan-2019

    On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients were seen at the Royal Liverpool and Broadgreen University Hospital. This means that the patient element of the SONIA 2 clinical trial is now officially over. Patients from all over Europe ca.. ...more

  • Looking forward to 2019

    Date: 11-Jan-2019

    Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like to take the opportunity to look at all our plans for 2019. From trips aboard to new research, it seems like 2019 will be as busy as ever. At the end of the month, the AKU Society team and tru.. ...more

  • 2018 In Review

    Date: 04-Jan-2019

    A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behind us, we would like to take the opportunity to look back at another successful year for the AKU Society. Our 2nd International Patient Workshop In April we ho.. ...more

  • DevelopAKUre SONIA 2 - Update

    Date: 12-Dec-2018

    We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patients. Both Hôpital Necker – Enfants Malades (http://hopital-necker.aphp.fr/) in Paris and The National Institute of Rheumatic Disease, PiešŇ•any, Slovakia, have now completed seeing A.. ...more

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AKU Blog

Meet the patient - Simon Laxon

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more