AKU Blog

  • First Children's AKU Workshop

    Date: 08-Aug-2017

    On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they can ex.. ...more

  • Farewell from Rory and Robin

    Date: 25-Jul-2017

    In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures new. They will both be sorely missed by both patients and colleagues alike. Rory I started working for the AKU Society in September last year. The entire.. ...more

  • Meet the patient - Antony Kelly

    Date: 19-Jul-2017

    In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at only a fe.. ...more

  • Farewell from Oliver

    Date: 11-Jul-2017

    Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At the end of this week, he’ll be leaving to move into a new role at Roche but will still be helping rare disease patients to access new treatments. In today’s blog, Oliver talks about what&rs.. ...more




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AKU Blog

Introducing Tanisha Spratt, PhD Researcher
13-Dec-2017

The AKU Society is currently supporting a PhD research project developed by Tanisha Spratt (http.. ...more

Garrod Day 2017
06-Dec-2017

In 1897 Archibald (later Sir Archibald) Garrod was working as a doctor in London’s Gr.. ...more

Our Seventh Patient Workshop
27-Nov-2017

On Wednesday 22nd November, the AKU Society held its seventh Patient Workshop. Alkaptonuria (AKU.. ...more

Hannah Shepherd's Everest Story
15-Nov-2017

Here at the AKU Society we are very lucky to have so many talented and dedicated people working .. ...more

Introducing Reece: Admin and Communications Officer
07-Nov-2017

Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Commu.. ...more