AKU Blog

  • 2017 in Review

    Date: 20-Dec-2017

    So 2017 is finally coming to an end. This year has been one of our busiest yet, with THREE patient workshops, a flurry of fundraising activity and even a bit of globe-trotting to promote the AKU Society! We have lots of plans for 2018, which we will release early in the New Year. Now, it’s.. ...more

  • Introducing Tanisha Spratt, PhD Researcher

    Date: 13-Dec-2017

    The AKU Society is currently supporting a PhD research project developed by Tanisha Spratt (https://research.sociology.cam.ac.uk/profile/tanisha-spratt), of the University of Cambridge’s Department of Sociology. Here, Tanisha answers some of our questions. .. ...more

  • Garrod Day 2017

    Date: 06-Dec-2017

    In 1897 Archibald (later Sir Archibald) Garrod was working as a doctor in London’s Great Ormond Street Hospital. A mother came in with a new-born child and a nappy, stained brownish-black. Interested, Garrod did some research. After a while, he found forty different cases of the disea.. ...more

  • Our Seventh Patient Workshop

    Date: 27-Nov-2017

    On Wednesday 22nd November, the AKU Society held its seventh Patient Workshop. Alkaptonuria (AKU) patients from all over the country, with their families and carers, flocked to the Bluecoat (http:///www.thebluecoat.org.uk/) in Liverpool. A day of advice and networking was in store for them. .. ...more

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AKU Blog

Brexit and AKU

In 2019, the AKU Society’s international clinical trial, DevelopAKUre (http://www.developa.. ...more

Rare Disease Day 2018

On Wednesday February 28th the world marked Rare Disease Day (https://www.rarediseaseday.org.. ...more

Edinburgh Half Marathon: Meet The Runner

The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinbur.. ...more

A Tyrosine Study with Dr. Milad Khedr

Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is st.. ...more

Browsealoud - A New Accessible Tool For Our Website.

To make our website more accessible to visitors with different needs, the AKU Society has in.. ...more