AKU Blog

  • RE(ACT) Congress America 2019 - Toronto

    Date: 24-May-2019

    This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress (https://www.react-congress.org/), set up by Dr Olivier Menzel and his B.. ...more

  • Donating to us via Facebook

    Date: 03-May-2019

    Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog, we will be giving you som.. ...more

  • Stand Up to AKU Comedy Night 2019 - Raffle Prizes!

    Date: 25-Apr-2019

    Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fantastic comedy acts performing at the Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/) in the centre of Liverpool. The fabul.. ...more

  • Meet the patient - Simon Laxon

    Date: 18-Apr-2019

    Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him. Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to feeling .. ...more

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AKU Blog

Meet Maria - AKU Society Student Placement

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more

DevelopAKUre - A History

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more