We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms (http://theportlandarms.co.uk/wp/#home), Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the.. ...more

New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC), which gives nitisinone to English and Scottish AKU patients, was ru.. ...more

We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust (https://www.childwicktrust.org/). This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in t.. ...more

We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vacancies) and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a ma.. ...more