AKU Blog

  • Stand Up for AKU 2018

    Date: 08-Aug-2018

    We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms (http://theportlandarms.co.uk/wp/#home), Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the.. ...more

  • New Research Shows Nitisinone Treats AKU

    Date: 31-Jul-2018

    New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC), which gives nitisinone to English and Scottish AKU patients, was ru.. ...more

  • SOFIA-Paediatric: New Research Study

    Date: 25-Jul-2018

    We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust (https://www.childwicktrust.org/). This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in t.. ...more

  • Vacancy: Fundraising Officer

    Date: 18-Jul-2018

    We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vacancies) and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a ma.. ...more

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DevelopAKUre SONIA 2 - Update

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more

Garrod Day Coffee Morning 2018 - On The Day

Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod&.. ...more

Sir Archibald Garrod and Garrod Day 2018

Garrod Day is quickly approaching. It’s a very important day in the history of alkapto.. ...more

October at the AKU Society

The AKU Society has had a hectic month. In today’s blog, we hear about what each team .. ...more

Stand Up For AKU Comedy Night Spectacular!

Last week we held our third annual Stand Up for AKU Comedy Night in Cambridge, at the snug a.. ...more