In this week’s blog, we meet Juliet, our new Fundraising Officer. Juliet will be involved in apply for funds from trusts and foundations along with organising exciting community events. All to support the vital work the charity does to help patients with AKU. .. ...more

In 2012, AKU Society CEO Nick Sireau (http://www.akusociety.org/new-trustees/nicolas-sireau-chairman-of-trustees) and others founded a charity called Findacure (https://www.findacure.org.uk/). Findacure helps rare disease patient groups get off the ground. The hope is that all can enjoy the .. ...more

This summer, we are looking to update our AKU recipe booklet. We invite patients to send in their favourite recipes, which we will adapt and add to our collection. If you have any ideas, email Lesley at [email protected] The National Alkaptonuria Centre (http://www.akusociety.org/aku-na.. ...more

The newly published results of a study held at the National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pi.. ...more