This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress (https://www.react-congress.org/), set up by Dr Olivier Menzel and his B.. ...more

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog, we will be giving you som.. ...more

Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fantastic comedy acts performing at the Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/) in the centre of Liverpool. The fabul.. ...more

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him. Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to feeling .. ...more