AKU Blog

  • Stand Up To AKU 2019!

    Date: 12-Apr-2019

    We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/), where we hosted 2017’s barnstorming night. Pam Ford is back at the wheel and is sure to keep.. ...more

  • Luton Health Awareness Event

    Date: 05-Apr-2019

    On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start (https://www.flyingstartluton.com/) and Public Health Luton worked in partn.. ...more

  • EURORDIS Winter School 2019

    Date: 29-Mar-2019

    In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for the European Organisation for Rare Diseases Winter School. A major player in the world of rare diseases is EURORDIS (https://www.eurordis.org), the European Organisation for Rare Diseases. .. ...more

  • Rare Disease Day 2019

    Date: 14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events happening internationally. The AKU S.. ...more




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AKU Blog

Meet Maria - AKU Society Student Placement
23-Aug-2019

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results
23-Jul-2019

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK
19-Jul-2019

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society
04-Jul-2019

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more