AKU Blog

  • Stand Up for AKU 2018

    Date: 08-Aug-2018

    We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms (http://theportlandarms.co.uk/wp/#home), Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the.. ...more

  • New Research Shows Nitisinone Treats AKU

    Date: 31-Jul-2018

    New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC), which gives nitisinone to English and Scottish AKU patients, was ru.. ...more

  • SOFIA-Paediatric: New Research Study

    Date: 25-Jul-2018

    We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust (https://www.childwicktrust.org/). This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in t.. ...more

  • Vacancy: Fundraising Officer

    Date: 18-Jul-2018

    We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vacancies) and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a ma.. ...more




AKU Twitter

AKU Blog

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more

Garrod Day Coffee Morning 2018 - On The Day
28-Nov-2018

Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod&.. ...more

Sir Archibald Garrod and Garrod Day 2018
01-Nov-2018

Garrod Day is quickly approaching. It’s a very important day in the history of alkapto.. ...more

October at the AKU Society
25-Oct-2018

The AKU Society has had a hectic month. In today’s blog, we hear about what each team .. ...more

Stand Up For AKU Comedy Night Spectacular!
10-Oct-2018

Last week we held our third annual Stand Up for AKU Comedy Night in Cambridge, at the snug a.. ...more