AKU Blog

  • Stand Up To AKU Comedy Night - Liverpool 2019

    Date: 20-Jun-2019

    Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/)in the centre of Liverpool. Overall, we raised £694, through online sales, on-the-door sales and raffle ticket sales. The raffle was a huge succe.. ...more

  • RCN Congress May 2019

    Date: 14-Jun-2019

    The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event of the nursing calendar and attracts more than 4,000 nurses from across the UK and beyond. It provides a platform for nurses to share and develop nursing practice and influence health policy debates. T.. ...more

  • AKU Society Brazil - Flavia at the NIH

    Date: 07-Jun-2019

    Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasil.com/), Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) (https://www.nih.gov/)which is based in Bethesda, Maryland, USA... ...more

  • RE(ACT) Congress America 2019 - Toronto

    Date: 24-May-2019

    This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress (https://www.react-congress.org/), set up by Dr Olivier Menzel and his B.. ...more

AKU Twitter

AKU Blog

AKU Patient Workshop 2019 - Garrod Day Special

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more