AKU Blog

  • Shree Swaminarayan Mandir Kingsbury Grand Opening

    Date: 27-Aug-2014

    Last week Lesley and Sorsha visited the grand opening of the new Shree Swaminarayan Mandir Temple in Kingsbury, London. They were there to receive a generous donation to support the work of the AKU Society. In this week’s blog we hear about the day, and learn more about the community behin.. ...more

  • Meet Jenni, our Summer Intern

    Date: 23-Aug-2014

    Jenni is a Cambridge student who is interning with us here at the AKU Society for four weeks. She’s been here for two weeks already and has another two weeks to go. In today’s blog we find out a bit more about her and the experience so far. What are you currently studying at Universi.. ...more

  • Sharing AKU Research

    Date: 20-Aug-2014

    Last week we held a research and science extravaganza event on PatientsLikeMe. All week we had research experts online to answer patient questions, resulting in some great discussions. In today’s blog we take a look at those discussions and share some information about AKU research. Sc.. ...more

  • Research and Science Extravaganza Launches Monday!

    Date: 06-Aug-2014

    Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science expert forum is a chance for.. ...more




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Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more