AKU Blog

  • Meet Jenni, our Summer Intern

    Date: 23-Aug-2014

    Jenni is a Cambridge student who is interning with us here at the AKU Society for four weeks. She’s been here for two weeks already and has another two weeks to go. In today’s blog we find out a bit more about her and the experience so far. What are you currently studying at Universi.. ...more

  • Sharing AKU Research

    Date: 20-Aug-2014

    Last week we held a research and science extravaganza event on PatientsLikeMe. All week we had research experts online to answer patient questions, resulting in some great discussions. In today’s blog we take a look at those discussions and share some information about AKU research. Sc.. ...more

  • Research and Science Extravaganza Launches Monday!

    Date: 06-Aug-2014

    Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science expert forum is a chance for.. ...more

  • SONIA 2 – An Update on our Clinical Trial

    Date: 30-Jul-2014

    Our SONIA 2 clinical trial is underway at all our sites across Europe. Conducting such a complex trial across three countries is not easy, but the teams at each centre have been working hard to ensure everything runs smoothly. Today we take a look at how the trial is progressing. Recruitment.. ...more

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Rare Disease Day 2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more

Cambridge Half Marathon 2019: On the Day

Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They rai.. ...more

Cambridge Half Marathon 2019: Meet the Runners

The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roa.. ...more

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more