AKU Blog

  • Stand Up To AKU 2019!

    Date: 12-Apr-2019

    We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/), where we hosted 2017’s barnstorming night. Pam Ford is back at the wheel and is sure to keep.. ...more

  • Luton Health Awareness Event

    Date: 05-Apr-2019

    On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start (https://www.flyingstartluton.com/) and Public Health Luton worked in partn.. ...more

  • EURORDIS Winter School 2019

    Date: 29-Mar-2019

    In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for the European Organisation for Rare Diseases Winter School. A major player in the world of rare diseases is EURORDIS (https://www.eurordis.org), the European Organisation for Rare Diseases. .. ...more

  • Rare Disease Day 2019

    Date: 14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events happening internationally. The AKU S.. ...more

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AKU Blog

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more

Get Involved In Garrod Day 2019

It’s that time of year again; our annual Garrod Day Coffee Morning is on the 25th of N.. ...more

In Memory of Ann Kerrigan – AKU Champion

We are very sad to announce that Ann Kerrigan passed away last week due to complications dur.. ...more

Meet Maria - AKU Society Student Placement

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more