AKU Blog

  • Edinburgh Half Marathon: Meet The Runner

    Date: 21-Feb-2018

    The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinburgh Half Marathon, part of Edinburgh’s annual Marathon Festival, on 27th May to raise money for us. Jamie lives in the beautiful Scottish town of St. Andrews. He is studying for a master&rsquo.. ...more

  • A Tyrosine Study with Dr. Milad Khedr

    Date: 14-Feb-2018

    Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is studying the effect of nitisinone on the tyrosine levels of AKU patients. Here, we ask him about his work. 1) What is the purpose of this study? Alkaptonuria (AKU) means that.. ...more

  • Browsealoud: A New Accessible Tool For Our Website.

    Date: 07-Feb-2018

    To make our website more accessible to visitors with different needs, the AKU Society has installed support software called Browsealoud (https://www.youtube.com/watch?v=LH7657-xBPI&feature=youtu.be&list=PLvSZbmGbKpCSMfDTIuK7OnBvH5Iy8WskA)from a company called Texthelp (https://www.te.. ...more

  • Meet the Patient: Bob Montague

    Date: 25-Jan-2018

    In this week’s blog, we hear about Bob Montague, who went to the National Alkaptonuria Centre (https://www.akusociety.org/aku-national-aku-centre.html) (NAC) for the first time this January. Now 70 years old, Bob read law at the London School of Economics (http://www.lse.ac.uk/),.. ...more

AKU Twitter

AKU Blog

Vacancy: Fundraising Officer

We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vac.. ...more

Meet the Patient: Selena from ALCAP

ALCAP (http://alcap.fr/) (Association pour la Lutte Contre L’Alcaptonurie) is our Fren.. ...more

Google Ad Grants

Have you noticed the adverts which appear at the top of Google search result pages? They are.. ...more

The Edinburgh Half Marathon.

The Edinburgh Marathon Festival (https://www.edinburghmarathon.com/) is the second biggest r.. ...more


The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing serv.. ...more