AKU Blog

  • Farewell from Reece

    Date: 26-Sep-2018

    Reece, our Admin and Communications Officer, is leaving our team at the end of this week. He is going back to the University of Cambridge to study for Master’s in Classics, with a particular focus on the politics of ancient Rome. This week, Reece talks about the highlights of his time at the A.. ...more

  • Stand Up for AKU 2018 - Raffle Prizes

    Date: 19-Sep-2018

    Preparations are underway for Stand up for AKU! - our charity comedy night, coming up on 3rd October at 7.30pm. It’s in Cambridge’s Portland Arms, a great venue for live comedy. Five professional comedians (Pam Ford, Rob Coleman, Jason Stampe, Jenny B Side and Don Biswas) are.. ...more

  • Will Writing with McClure

    Date: 12-Sep-2018

    10th-16th September is Remember a Charity (https://www.rememberacharity.org.uk/) Week. Legacy giving – the gifts which people leave in their wills – are an important source of funding for UK charities. It makes up 6% of the charity sector’s total income. Charities of all si.. ...more

  • Introducing Juliet: Fundraising Officer

    Date: 05-Sep-2018

    In this week’s blog, we meet Juliet, our new Fundraising Officer. Juliet will be involved in apply for funds from trusts and foundations along with organising exciting community events. All to support the vital work the charity does to help patients with AKU. .. ...more

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AKU Blog

Meet the patient - Simon Laxon

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more