AKU Blog

  • Stand Up for AKU 2018

    Date: 08-Aug-2018

    We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms (http://theportlandarms.co.uk/wp/#home), Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the.. ...more

  • New Research Shows Nitisinone Treats AKU

    Date: 31-Jul-2018

    New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC), which gives nitisinone to English and Scottish AKU patients, was ru.. ...more

  • SOFIA-Paediatric: New Research Study

    Date: 25-Jul-2018

    We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust (https://www.childwicktrust.org/). This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in t.. ...more

  • Vacancy: Fundraising Officer

    Date: 18-Jul-2018

    We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vacancies) and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a ma.. ...more

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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more