AKU Blog

  • A Step for a Step…Everest Base Camp Climb!

    Date: 12-Oct-2017

    So, me (Hannah from the gait lab) and my friend Steven have decided to take on the challenge of climbing to Everest Base Camp on November 14th. Of course, the charity of our choice is the AKU Society. The trek will take 15 days in total and will take us.. ...more

  • First Children's AKU Workshop

    Date: 08-Aug-2017

    On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they can ex.. ...more

  • Farewell from Rory and Robin

    Date: 25-Jul-2017

    In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures new. They will both be sorely missed by both patients and colleagues alike. Rory I started working for the AKU Society in September last year. The entire.. ...more

  • Meet the patient - Antony Kelly

    Date: 19-Jul-2017

    In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at only a fe.. ...more

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AKU Blog

Brexit and AKU

In 2019, the AKU Society’s international clinical trial, DevelopAKUre (http://www.developa.. ...more

Rare Disease Day 2018

On Wednesday February 28th the world marked Rare Disease Day (https://www.rarediseaseday.org.. ...more

Edinburgh Half Marathon: Meet The Runner

The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinbur.. ...more

A Tyrosine Study with Dr. Milad Khedr

Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is st.. ...more

Browsealoud - A New Accessible Tool For Our Website.

To make our website more accessible to visitors with different needs, the AKU Society has in.. ...more