AKU Blog

  • 2018 In Review

    Date: 04-Jan-2019

    A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behind us, we would like to take the opportunity to look back at another successful year for the AKU Society. Our 2nd International Patient Workshop In April we ho.. ...more

  • DevelopAKUre SONIA 2 - Update

    Date: 12-Dec-2018

    We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patients. Both Hôpital Necker – Enfants Malades (http://hopital-necker.aphp.fr/) in Paris and The National Institute of Rheumatic Disease, PiešŇ•any, Slovakia, have now completed seeing A.. ...more

  • Garrod Day Coffee Morning 2018 - On The Day

    Date: 28-Nov-2018

    Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod’s birthday. Garrod Day is a day coined by the AKU Society; this is our fourth year celebrating Sir Archibald’s birthday. We celebrated it on the 26th of November this year as his birthday .. ...more

  • Sir Archibald Garrod and Garrod Day 2018

    Date: 01-Nov-2018

    Garrod Day is quickly approaching. It’s a very important day in the history of alkaptonuria (AKU). In this week’s blog we celebrate all of Sir Archibald Garrod’s fantastic achievements and discuss how you can make an impact by hosting your own coffee morning for Garrod Day... ...more




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AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more