AKU Blog

  • AKU Society's Sixth Patient Workshop

    Date: 22-Mar-2017

    Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue that was well attended by AKU patients and their family members. In this week’s blog, we talk about how the day went. The day started out with smiles and greeting from the AKU team.. ...more

  • London Marathon 2017 - Meet the Runner

    Date: 15-Mar-2017

    The London Marathon is one of the most prestigious running events in the world. This year we are lucky enough to have our very own AKU runner compete in the event. Having reviewed several potential candidates we have decided our runner will be Joe England! We believe Joe is the perfect choice fo.. ...more

  • Rare Disease Day 2017

    Date: 10-Mar-2017

    Every year people from all over the word come together to celebrate Rare Disease Day. A day designed to raise awareness, bring together the community and to highlight some of the fantastic work that is being done in the rare disease area. This year was the day’s 10th anniversary a.. ...more

  • Cambridge Half Marathon 2017

    Date: 06-Mar-2017

    The AKU Society had seven places in this year’s Cambridge Half Marathon. With each of our brilliant runner’s fundraising for the AKU Society, they raised a fantastic combined total of £1609. Our Admin & Events Officer Robin tells us more about how the day went. Rac.. ...more




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A Step for a Step…Everest Base Camp Climb!
12-Oct-2017

So, myself (Hannah from the gait lab) and my friend Steven have decided to take on the chall.. ...more

First Children's AKU Workshop
08-Aug-2017

On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Z.. ...more

Farewell from Rory and Robin
25-Jul-2017

In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures.. ...more

Meet the patient - Antony Kelly
19-Jul-2017

In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell.. ...more

Farewell from Oliver
11-Jul-2017

Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At t.. ...more