AKU Blog

  • Presenting National AKU Centre Research at an International Conference

    Date: 07-Jun-2017

    This week’s blog comes from the team at Costello Medical (http://www.costellomedical.com/). They recently presented an incredible poster of National AKU Centre research at the InSPiRe (Innovation in Small Populations Research) conference. (http://www2.warwick.ac.uk/fac/med/news/eventscal/i.. ...more

  • EURORDIS Membership Meeting 2017, Budapest

    Date: 31-May-2017

    On the 19th- 20th May, Oliver and Ciarán travelled to Budapest to represent the AKU Society at the Eurordis - Rare Diseases Europe (http://www.eurordis.org/), membership meeting. The annual event brings together patient groups from all over Europe for its annual general meeting and a day .. ...more

  • RCN Congress 2017

    Date: 25-May-2017

    The Royal College of Nursing Congress is held each year to bring together over 4,000 nurses. Coming from a variety of areas to develop and learn nursing best practice, it is the biggest nursing event of the year. This year’s Congress was held in Liverpool at the ACC Liverpool from .. ...more

  • The Information Standard

    Date: 17-May-2017

    The AKU Society is excited to announce that we are now accredited members of the Information Standard. The Information Standard is an initiative supported by NHS England that is designed to improve the quality of health and care information that is available to the public. It was set up to e.. ...more




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AKU Blog

Introducing Tanisha Spratt, PhD Researcher
13-Dec-2017

The AKU Society is currently supporting a PhD research project developed by Tanisha Spratt (http.. ...more

Garrod Day 2017
06-Dec-2017

In 1897 Archibald (later Sir Archibald) Garrod was working as a doctor in London’s Gr.. ...more

Our Seventh Patient Workshop
27-Nov-2017

On Wednesday 22nd November, the AKU Society held its seventh Patient Workshop. Alkaptonuria (AKU.. ...more

Hannah Shepherd's Everest Story
15-Nov-2017

Here at the AKU Society we are very lucky to have so many talented and dedicated people working .. ...more

Introducing Reece: Admin and Communications Officer
07-Nov-2017

Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Commu.. ...more