AKU Blog

  • Support Katie as She Runs for AKU

    Date: 02-Sep-2014

    It is always fantastic when people decide to support the AKU Society with a charity event. This week we hear from Katie Smith, who has decided to run the Cardiff half marathon to raise money for the AKU Society. Hiya, I’m Katie Smith, a third year physiotherapy student at Cardiff Univ.. ...more

  • Shree Swaminarayan Mandir Kingsbury Grand Opening

    Date: 27-Aug-2014

    Last week Lesley and Sorsha visited the grand opening of the new Shree Swaminarayan Mandir Temple in Kingsbury, London. They were there to receive a generous donation to support the work of the AKU Society. In this week’s blog we hear about the day, and learn more about the community behin.. ...more

  • Meet Jenni, our Summer Intern

    Date: 23-Aug-2014

    Jenni is a Cambridge student who is interning with us here at the AKU Society for four weeks. She’s been here for two weeks already and has another two weeks to go. In today’s blog we find out a bit more about her and the experience so far. What are you currently studying at Universi.. ...more

  • Sharing AKU Research

    Date: 20-Aug-2014

    Last week we held a research and science extravaganza event on PatientsLikeMe. All week we had research experts online to answer patient questions, resulting in some great discussions. In today’s blog we take a look at those discussions and share some information about AKU research. Sc.. ...more




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AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more