AKU Blog

  • A Research and Science Extravaganza

    Date: 23-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more

  • The Value of the NAC

    Date: 16-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more




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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more