AKU Blog

  • Research and Science Extravaganza Launches Monday!

    Date: 06-Aug-2014

    Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science expert forum is a chance for.. ...more

  • SONIA 2 – An Update on our Clinical Trial

    Date: 30-Jul-2014

    Our SONIA 2 clinical trial is underway at all our sites across Europe. Conducting such a complex trial across three countries is not easy, but the teams at each centre have been working hard to ensure everything runs smoothly. Today we take a look at how the trial is progressing. Recruitment.. ...more

  • A Research and Science Extravaganza

    Date: 23-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more

  • The Value of the NAC

    Date: 16-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more




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AKU Society upcoming events in Winter 2019
12-Sep-2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more

Get Involved In Garrod Day 2019
06-Sep-2019

It’s that time of year again; our annual Garrod Day Coffee Morning is on the 25th of N.. ...more

In Memory of Ann Kerrigan – AKU Champion
28-Aug-2019

We are very sad to announce that Ann Kerrigan passed away last week due to complications dur.. ...more

Meet Maria - AKU Society Student Placement
23-Aug-2019

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more