AKU Blog

  • Research and Science Extravaganza Launches Monday!

    Date: 06-Aug-2014

    Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science expert forum is a chance for.. ...more

  • SONIA 2 – An Update on our Clinical Trial

    Date: 30-Jul-2014

    Our SONIA 2 clinical trial is underway at all our sites across Europe. Conducting such a complex trial across three countries is not easy, but the teams at each centre have been working hard to ensure everything runs smoothly. Today we take a look at how the trial is progressing. Recruitment.. ...more

  • A Research and Science Extravaganza

    Date: 23-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more

  • The Value of the NAC

    Date: 16-Jul-2014

    In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of the NAC to patients. This w.. ...more




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AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more

AKU Society upcoming events in Winter 2019
12-Sep-2019

It's another busy few months here at the AKU Society. We are travelling all over Europe to r.. ...more