Resources


This page provides resources for AKU patients, carers and their families. The information on this page includes leaflets about AKU and our services, impact reports, newsletters and presentations from our patient workshops.

AKU Society Leaflets

We regularly produce leaflets with the latest information about services available for AKU patients and carers. Please check back regularly for new leaflets and information.

National AKU Centre Leaflet National AKU Centre Leaflet (4921 KB)

AKU Society Leaflet AKU Society Leaflet (3371 KB)

What is AKU Leaflet What is AKU Leaflet (1852 KB)

 

Impact Report

Our annual Impact Report showcases our work and highlights our key achievements:

Impact Report 2015 Impact Report 2015 (52744 KB)

Newsletters

We post regular newsletters to our UK supports, keeping them updated on our news and work. You can access our most recent newsletters below:

Summer Newsletter 2016 Summer Newsletter 2016 (6360 KB)

 

Spring Newsletter 2016 Spring Newsletter 2016 (6087 KB)

 

Winter Newsletter 2015 Winter Newsletter 2015 (2593 KB)

 

Autumn Newsletter 2015 Autumn Newsletter 2015 (3267 KB)

 

Spring Newsletter 2015 Spring Newsletter 2015 (3062 KB)

 

International Patient Workshop Presentations

On 20th April 2016 we held our first International Patient Workshop in Liverpool, where AKU patients attended from 13 different countries. You can download the presentations from the workshop below:

Pete Moore - Pain Toolkit Pete Moore - Pain Toolkit (19315 KB)

Dr Andrew Jones - Chronic Pain in AKU Dr Andrew Jones - Chronic Pain in AKU (3133 KB)

James Moore - Mental Health in Long-Term Conditions James Moore - Mental Health in Long-Term Conditions (4434 KB)

Shirley Judd - Diet and AKU Shirley Judd - Diet and AKU (2150 KB)

Hannah Shepherd - Gait Analysis in AKU Hannah Shepherd - Gait Analysis in AKU (807 KB)

Prof Gabor Barton - Gait Analysis in AKU Prof Gabor Barton - Gait Analysis in AKU (2556 KB)

Dr Adam Taylor - Research into AKU Dr Adam Taylor - Research into AKU (1274 KB)

Sophie Taylor and Nadia Burgess - Physiotherapy in AKU Sophie Taylor and Nadia Burgess - Physiotherapy in AKU (3628 KB)





AKU Twitter

AKU Blog

Findacure Firewalk for AKU! A New Exciting Fundraising Opportunity.
18-Jan-2017

On 18th February the AKU Society will be taking part in the Findacure Cambridge Firewalk! Firewa.. ...more

Looking Forward to 2017
04-Jan-2017

With Christmas all but over and the New Year well underway, we take a look at all the exciting p.. ...more

2016 In Review
13-Dec-2016

Now that 2016 is finally drawing to an end, we thought it would be a good opportunity t.. ...more

Introducing Robin, Our New Admin and Events Officer
07-Dec-2016

Last week, we welcomed Robin, to the AKU Society team! As our new Admin and Events Officer, he w.. ...more

The AKU Society’s International Garrod Day Coffee Morning
30-Nov-2016

November the 25th is an important day in The AKU Society’s calendar. On this day, we celebrate G.. ...more