Our Third Patient Workshop: 7th June

07-Jun-2014

Your opportunity to meet other patients with AKU and get up to date on what we have been up to at the AKU Society!

Our first two patient workshops have gone brilliantly and we can't wait to make the third one better than ever!

The workshop will be held on Saturday 7th June at Alexandra Palace in London. It will run from 10am until 4pm, and lunch and refreshments will be provided. Invites have gone out, so check your post and emails to see directions to the venue.

The morning session will be given by Pete Moore, who is the creator of the Pain Toolkit. Pete was awarded the accolade of Pain Champion UK 2014. He will give his expertise on pain management, and will be giving out copies of his toolkit.

Other sessions will include updates from us at the AKU Society, as well as insights in to the progress being made by the DevelopAKUre Consortium. Prof Ranganath will also be attending the event, giving you a chance to chat to him about the National Alkaptonuria Centre and the clinical trials. This is also a fantastic opportunity to meet other patients and families.

We will also have guest speakers from Findacure and the Brittle Bone Society.

If you want to come along, please let Lesley know. You can contact her by email at [email protected] or over the phone at 01223 322 897.

With thanks to our funders, The Big Lottery Fund.




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