On Friday the 18th of January, the Official Opening of the Robert Gregory National Alkaptonuria Centre will be taking place.
The National AKU Centre is a free service in Liverpool funded by the Department of Health, open to anyone over the age of 16 who has been diagnosed with AKU and living in either England or Scotland. Patients who attend the NAC receive a full health assessment and treatment of Alkaptonuria (AKU), access to the drug nitisinone, and advice on living with the disease - including a physiotherapist and dieticians advice. It is needed to ensure that everyone who has AKU has access to a knowledgeable team of specialists who can manage their care efficiently.
The National AKU Centre will be officially opened by the AKU Society patron, Lord Kenneth Ward-Atherton, with centre lead, Dr L Ranganath, and founder of the AKU Society, Robert Gregory. It will take place from 12pm on the 18th of January, at Ward 9B in the Royal Liverpool University Hospital.
If you would like to attend, please note places are extremely limited. However, if you would like further information, please contact our Patient Support Officer, Lesley Harrison, by emailing her at [email protected].
My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more
In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more
Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more
The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more