The first symptom most AKU patients will experience is black or dark urine. Large quantities of HGA is excreted in the urine. If left to stand and exposed to the air, the urine will oxidise and start to turn black. The length of time needed for the urine to turn black can vary from patient to patient but nearly all patients’ urine will eventually turn black.
Black urine does not cause any physical harm, however it can be used as a diagnostic tool. Babies born with AKU may have a dark or red staining in their nappy as a result of HGA in the urine. Doctors should then carry out a urine or blood test to check the level of HGA in the baby’s body in order to confirm a diagnosis of AKU. 1
Published: 24.07.16 Next Review Date: 24.07.19
Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more
The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more
Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more
This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more