Take Part In An Event

Community events are a great way to raise crucial funds for the AKU Society, whilst improving awareness of the disease. We hold fun events throughout the year so click on an event below and join in. If you have your own ideas or would like to organise your own, please contact [email protected]

 

Children's Workshop

26-Jul-2017

Our first ever Children's Workshop will be held at London Zoo on Wednesday, July 26th. The day is all about children having fun whilst at the same time introducing the children to some of the people involved in working with AKU. The workshop will have lots of exciting activities throughout the day. There will be fun interactive sessions using a portable computer system 'Goblin Post Office' designed for children by the team at Liverpoo.....more

2017 Spartan Race

03-Sep-2017

September 3rd the AKU Society have 6 runners in the 2017 Spartan Race. The Spartan race is an endurance event that has competitors take on a 5k obstacle course across a terrain of hills, water and forest trails. This gruelling ordeal makes participants jump over fire, climb vertical walls, scramble up ropes and tackle a host of other obstacles they do not reveal until the day itself! Our AKU runners will be he.....more




AKU Twitter

AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more