Take Part In An Event

Community events are a great way to raise crucial funds for the AKU Society, whilst improving awareness of the disease. We hold fun events throughout the year so click on an event below and join in. If you have your own ideas or would like to organise your own, please contact [email protected]

 

Children's Workshop

26-Jul-2017

Our first ever Children's Workshop will be held at London Zoo on Wednesday, July 26th. The day is all about children having fun whilst at the same time introducing the children to some of the people involved in working with AKU. The workshop will have lots of exciting activities throughout the day. There will be fun interactive sessions using a portable computer system 'Goblin Post Office' designed for children by the team at Liverpoo.....more

2017 Spartan Race

03-Sep-2017

September 3rd the AKU Society have 6 runners in the 2017 Spartan Race. The Spartan race is an endurance event that has competitors take on a 5k obstacle course across a terrain of hills, water and forest trails. This gruelling ordeal makes participants jump over fire, climb vertical walls, scramble up ropes and tackle a host of other obstacles they do not reveal until the day itself! Our AKU runners will be he.....more




AKU Twitter

AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more