Take Part In An Event

Community events are a great way to raise crucial funds for the AKU Society, whilst improving awareness of the disease. We hold fun events throughout the year so click on an event below and join in. If you have your own ideas or would like to organise your own, please contact [email protected]

 

Children's Workshop

26-Jul-2017

Our first ever Children's Workshop will be held at London Zoo on Wednesday, July 26th. The day is all about children having fun whilst at the same time introducing the children to some of the people involved in working with AKU. The workshop will have lots of exciting activities throughout the day. There will be fun interactive sessions using a portable computer system 'Goblin Post Office' designed for children by the team at Liverpoo.....more

2017 Spartan Race

03-Sep-2017

September 3rd the AKU Society have 6 runners in the 2017 Spartan Race. The Spartan race is an endurance event that has competitors take on a 5k obstacle course across a terrain of hills, water and forest trails. This gruelling ordeal makes participants jump over fire, climb vertical walls, scramble up ropes and tackle a host of other obstacles they do not reveal until the day itself! Our AKU runners will be he.....more




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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more