Where your Money Goes

Donations of every size help the AKU Society to continue its support of AKU Patients, whilst searching for a cure.


In the last financial year we had an expenditure of £229,248.

£160,957 went on our research, working towards our ultimate goal of curing AKU.

£58,608 was spent on patient support, helping those who are affected by AKU.

Thank you to everyone who has donated, past and present. Without such generosity we wouldn’t be able to continue our work.

See our full accounts for 2016 here: http://apps.charitycommission.gov.uk/Accounts/Ends52/0001101052_AC_20160630_E_C.PDF






AKU Twitter

AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more