Where your Money Goes

Donations of every size help the AKU Society to continue its support of AKU Patients, whilst searching for a cure.


In the last financial year we had an expenditure of £229,248.

£160,957 went on our research, working towards our ultimate goal of curing AKU.

£58,608 was spent on patient support, helping those who are affected by AKU.

Thank you to everyone who has donated, past and present. Without such generosity we wouldn’t be able to continue our work.

See our full accounts for 2016 here: http://apps.charitycommission.gov.uk/Accounts/Ends52/0001101052_AC_20160630_E_C.PDF






AKU Twitter

AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more