Friday, October 26, 2012
£2,500 to help Simon Laxon Coventry Telegraph features an article about Simon Laxon and his trip to the NIH in Washington. Simon had already made three visits to the NIH, which cost around £500 each time. Now, thanks to the fundraising, he can attend up to five more visits to receive Nitisinone and be a part of the clinical trial. Simon Laxon, an AKU patient, received vital treatment at the National Institute of Health in the US after fundraisers managed to raise a massive £2,500 for the rest of the funds needed. To read more about the fundraising and about Simon in the Coventry Telegraph article,click here.
DevelopAKUre is a series of major international clinical trials, run by a consortium of 12 European partners. It aims to study a potential new drug, called nitisinone, and assess its potential effectiveness in treating the rare disease, alkaptonuria (AKU).
DevelopAKUre is co-funded by a grant from the European Commission. This website is run by a UK patient group, the AKU Society. Learn more about AKU on the AKU Society's What is AKU page.
In today’s blog Chief investigator Prof. Ranganath reinforces the need for SONIA 2 pat.. ...more