Our Funders


We would like a say a huge thank you to the trusts and foundations below for supporting our work.

 - Online project. Overcoming the lack of information for AKU Patients. 



        - DevelopAKUre project. Our clinical trial into the drug nitisinone.    

     


- Patient support before, during and after NAC clinics

   - Breaking Down Barriers Project. Overcoming barriers to information. 


 - Research funding at the University of Liverpool and Lancaster University.


          - Funding towards our first Children’s workshop.




The Strangward Trust
- Continuation of our BLF project, “Reaching Communities”.

 


The Hedley Foundation- Funding towards our first Children’s workshop.



   - Reaching Communities.



The Albert Hunt Trust- Funding towards an adult workshop.



  - Adult workshop.



The Constance Travis Charitable Trust- General funds.



  - International AKU Patient Workshop and AKU Childrens book


  - Funding for a 2017 AKU Dietary Advice 


  - Supporting AKU patients in Bedfordshire


 - Provided us with a free bannerstand. 









AKU Twitter

AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more