Our Funders


We would like a say a huge thank you to the trusts and foundations below for supporting our work.

 - Online project. Overcoming the lack of information for AKU Patients. 



        - DevelopAKUre project. Our clinical trial into the drug nitisinone.    

     


- Patient support before, during and after NAC clinics

   - Breaking Down Barriers Project. Overcoming barriers to information. 


 - Research funding at the University of Liverpool and Lancaster University.


          - Funding towards our first Children’s workshop.




The Strangward Trust
- Continuation of our BLF project, “Reaching Communities”.

 


The Hedley Foundation- Funding towards our first Children’s workshop.



   - Reaching Communities.



The Albert Hunt Trust- Funding towards an adult workshop.



  - Adult workshop.



The Constance Travis Charitable Trust- General funds.



  - International AKU Patient Workshop and AKU Childrens book


  - Funding for a 2017 AKU Dietary Advice 


  - Supporting AKU patients in Bedfordshire


 - Provided us with a free bannerstand. 









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AKU Blog

The Edinburgh Half Marathon.
20-Jun-2018

The Edinburgh Marathon Festival (https://www.edinburghmarathon.com/) is the second biggest r.. ...more

AmazonSmile
13-Jun-2018

The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing serv.. ...more

RCN Congress 2018
06-Jun-2018

The Royal College of Nursing (RCN) Congress (https://www.rcn.org.uk/congress) is the biggest.. ...more

AKU Society at ECRD Vienna
30-May-2018

A rare disease is defined by the European Union (EU) as affecting fewer than one in 2,000 pe.. ...more

Welcome to our New Trustees
23-May-2018

You might have noticed that there have been some recent changes to the board of trustees. He.. ...more