Our Funders


We would like a say a huge thank you to the trusts and foundations below for supporting our work.

 - Online project. Overcoming the lack of information for AKU Patients. 



        - DevelopAKUre project. Our clinical trial into the drug nitisinone.    

     


- Patient support before, during and after NAC clinics

   - Breaking Down Barriers Project. Overcoming barriers to information. 


 - Research funding at the University of Liverpool and Lancaster University.


          - Funding towards our first Children’s workshop.




The Strangward Trust
- Continuation of our BLF project, “Reaching Communities”.

 


The Hedley Foundation- Funding towards our first Children’s workshop.



   - Reaching Communities.



The Albert Hunt Trust- Funding towards an adult workshop.



  - Adult workshop.



The Constance Travis Charitable Trust- General funds.



  - International AKU Patient Workshop and AKU Childrens book


  - Funding for a 2017 AKU Dietary Advice 


  - Supporting AKU patients in Bedfordshire


 - Provided us with a free bannerstand. 









AKU Twitter

AKU Blog

Scientists for a Day: AKU Outreach in Italy
18-Apr-2018

The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://ww.. ...more

Findacure: Communication and Rare Diseases
11-Apr-2018

There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU.. ...more

SHCA: Our Voice
04-Apr-2018

On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the.. ...more

Publicising our Work: Nick Sireau
27-Mar-2018

Dr. Nick Sireau is CEO of the AKU Society and Chair of Trustees. After his two sons were.. ...more

Brexit and AKU
14-Mar-2018

In 2019, the AKU Society’s international clinical trial, DevelopAKUre (http://www.developa.. ...more