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    Meet the patient - Simon Laxon
    18-Apr-2019

    Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

    Stand Up To AKU 2019!
    12-Apr-2019

    We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

    Luton Health Awareness Event
    05-Apr-2019

    On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

    EURORDIS Winter School 2019
    29-Mar-2019

    In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

    Rare Disease Day 2019
    14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more