Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.
Here at the AKU Society we are very lucky to have so many talented and dedicated people working .. ...more
Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Commu.. ...more
On 18th and 19th October, Lesley, our Patient Support Manager, and Carol, one of our AKU pat.. ...more
Last Month the National Alkaptonuria Centres' new data controller, Leanne joined the NAC team. H.. ...more