Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.
The newly published results of a study held at the National Alkaptonuria Centre (http://www... ...more
We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. Thi.. ...more
New research has proven for the first time that a drug called nitisinone treats AKU in peopl.. ...more
We have some exciting news. The AKU Society has just been awarded a £60,000 grant .. ...more