Sister Societies

Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.




AKU Twitter

AKU Blog

Scientists for a Day: AKU Outreach in Italy
18-Apr-2018

The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://ww.. ...more

Findacure: Communication and Rare Diseases
11-Apr-2018

There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU.. ...more

SHCA: Our Voice
04-Apr-2018

On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the.. ...more

Publicising our Work: Nick Sireau
27-Mar-2018

Dr. Nick Sireau is CEO of the AKU Society and Chair of Trustees. After his two sons were.. ...more

Brexit and AKU
14-Mar-2018

In 2019, the AKU Society’s international clinical trial, DevelopAKUre (http://www.developa.. ...more