Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.
The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://ww.. ...more
There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU.. ...more
On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the.. ...more
Dr. Nick Sireau is CEO of the AKU Society and Chair of Trustees. After his two sons were.. ...more