Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.
The Edinburgh Marathon Festival (https://www.edinburghmarathon.com/) is the second biggest r.. ...more
The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing serv.. ...more
The Royal College of Nursing (RCN) Congress (https://www.rcn.org.uk/congress) is the biggest.. ...more
A rare disease is defined by the European Union (EU) as affecting fewer than one in 2,000 pe.. ...more