Sister Societies

Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.




AKU Twitter

AKU Blog

RCN Congress 2017
25-May-2017

The Royal College of Nursing Congress is held each year to bring together over 4,000 nurses .. ...more

The Information Standard
17-May-2017

The AKU Society is excited to announce that we are now accredited members of the Information Sta.. ...more

Engaging Your Community For Fundraising
10-May-2017

On April 28th our Admin & Events Officer Robin gave a presentation on local com.. ...more

London Marathon 2017
05-May-2017

On 23rd April Joe England successfully completed the London Marathon on behalf of the AKU Societ.. ...more

UK Genetic Disorders Leadership Symposium
29-Mar-2017

On Friday 10th and Saturday 11th March Lesley attended the 3rd UK G.. ...more