Sister Societies

Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.




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AKU Blog

UK Genetic Disorders Leadership Symposium
29-Mar-2017

On Friday 10th and Saturday 11th March Lesley attended the 3rd UK G.. ...more

AKU Society's Sixth Patient Workshop
22-Mar-2017

Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue tha.. ...more

London Marathon 2017 - Meet the Runner
15-Mar-2017

The London Marathon is one of the most prestigious running events in the world. This year we are.. ...more

Rare Disease Day 2017
10-Mar-2017

Every year people from all over the word come together to celebrate Rare Disease Day. A day designed.. ...more

Cambridge Half Marathon 2017
06-Mar-2017

The AKU Society had seven places in this year’s Cambridge Half Marathon. With each of.. ...more