Sister Societies

Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.




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AKU Blog

Edinburgh Half Marathon: Meet The Runner
21-Feb-2018

The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinbur.. ...more

A Tyrosine Study with Dr. Milad Khedr
14-Feb-2018

Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is st.. ...more

Browsealoud - A New Accessible Tool For Our Website.
07-Feb-2018

To make our website more accessible to visitors with different needs, the AKU Society has in.. ...more

Meet the Patient - Bob Montague
25-Jan-2018

In this week’s blog, we hear about Bob Montague, who went to the National Alkaptonuria.. ...more

Two Months (and Three Events) with the AKU Society
16-Jan-2018

In December 2017, Reece Edmends, the AKU Society’s newly appointed Admin and Communication.. ...more