Since the AKU Society was founded in 2003, it has grown rapidly, helping several sister arms to become established in other countries. These have been set up to raise awareness of AKU, provide support and information to patients and families and promote medical research. They are run by patients and patient representatives who really understand AKU and the impact the disease can have on patients’ life.
The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more
On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more
Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more
A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more