aimAKU




aimAKU is the patient support group for AKU patients and their families in Italy.

Their aim is to bring patients and their families together, giving them access to experts in the field and the latest information about AKU. They keep Italian patients informed on the latest news, current research and development of potential treatments.

They work closely with the research teams based at the University of Siena, who provide analysis to the data collected in the DevelopAKUre clinical trials.

To find out more about aimAKU, take a look at their website.

 



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AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more