aimAKU




aimAKU is the patient support group for AKU patients and their families in Italy.

Their aim is to bring patients and their families together, giving them access to experts in the field and the latest information about AKU. They keep Italian patients informed on the latest news, current research and development of potential treatments.

They work closely with the research teams based at the University of Siena, who provide analysis to the data collected in the DevelopAKUre clinical trials.

To find out more about aimAKU, take a look at their website.

 



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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more