AKU Society APAC




The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families in the Asia-Pacific region.

They are currently focused on bringing together all those associated with AKU in the region, with a longer-term goal of improving the quality of life of AKU patients and their families, through providing resources and channels of interaction. 

In APAC, while general awareness of AKU is low, there is a small but growing community - more than 120 patients. If you are an AKU patient, family member, friend, or healthcare professional associated with AKU patients, please contact [email protected] to join the community! 

They are also always looking for people to volunteer. If you are interested in helping out in any way, please contact [email protected].




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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more