AKU Society APAC




The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families in the Asia-Pacific region.

They are currently focused on bringing together all those associated with AKU in the region, with a longer-term goal of improving the quality of life of AKU patients and their families, through providing resources and channels of interaction. 

In APAC, while general awareness of AKU is low, there is a small but growing community - more than 120 patients. If you are an AKU patient, family member, friend, or healthcare professional associated with AKU patients, please contact [email protected] to join the community! 

They are also always looking for people to volunteer. If you are interested in helping out in any way, please contact [email protected].




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AKU Blog

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more

Garrod Day Coffee Morning 2018 - On The Day
28-Nov-2018

Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod&.. ...more

Sir Archibald Garrod and Garrod Day 2018
01-Nov-2018

Garrod Day is quickly approaching. It’s a very important day in the history of alkapto.. ...more

October at the AKU Society
25-Oct-2018

The AKU Society has had a hectic month. In today’s blog, we hear about what each team .. ...more

Stand Up For AKU Comedy Night Spectacular!
10-Oct-2018

Last week we held our third annual Stand Up for AKU Comedy Night in Cambridge, at the snug a.. ...more