AKU Society APAC




The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families in the Asia-Pacific region.

They are currently focused on bringing together all those associated with AKU in the region, with a longer-term goal of improving the quality of life of AKU patients and their families, through providing resources and channels of interaction. 

In APAC, while general awareness of AKU is low, there is a small but growing community - more than 120 patients. If you are an AKU patient, family member, friend, or healthcare professional associated with AKU patients, please contact [email protected] to join the community! 

They are also always looking for people to volunteer. If you are interested in helping out in any way, please contact [email protected].




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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more