AKU Society of North America




The AKU Society of North America is the patient support group for AKU patients and their families in North America and Canada.

They focus on improving the quality of life of AKU patients and their families. They aim to do this through providing education, resources and opportunities for interaction between all those associated with AKU. They also aim to advance knowledge of AKU and possibilities for treatments through funding for research, education and meetings.

To find out more information about the AKU Society of North America, go to their website.




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AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more