AKU Society of North America




The AKU Society of North America is the patient support group for AKU patients and their families in North America and Canada.

They focus on improving the quality of life of AKU patients and their families. They aim to do this through providing education, resources and opportunities for interaction between all those associated with AKU. They also aim to advance knowledge of AKU and possibilities for treatments through funding for research, education and meetings.

To find out more information about the AKU Society of North America, go to their website.




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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more