AKU Society of North America




The AKU Society of North America is the patient support group for AKU patients and their families in North America and Canada.

They focus on improving the quality of life of AKU patients and their families. They aim to do this through providing education, resources and opportunities for interaction between all those associated with AKU. They also aim to advance knowledge of AKU and possibilities for treatments through funding for research, education and meetings.

To find out more information about the AKU Society of North America, go to their website.




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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more