AKU Society of North America




The AKU Society of North America is the patient support group for AKU patients and their families in North America and Canada.

They focus on improving the quality of life of AKU patients and their families. They aim to do this through providing education, resources and opportunities for interaction between all those associated with AKU. They also aim to advance knowledge of AKU and possibilities for treatments through funding for research, education and meetings.

To find out more information about the AKU Society of North America, go to their website.




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AKU Blog

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more

Garrod Day Coffee Morning 2018 - On The Day
28-Nov-2018

Yesterday was the annual Garrod Day Coffee Morning. We celebrated Sir Archibald Garrod&.. ...more

Sir Archibald Garrod and Garrod Day 2018
01-Nov-2018

Garrod Day is quickly approaching. It’s a very important day in the history of alkapto.. ...more

October at the AKU Society
25-Oct-2018

The AKU Society has had a hectic month. In today’s blog, we hear about what each team .. ...more

Stand Up For AKU Comedy Night Spectacular!
10-Oct-2018

Last week we held our third annual Stand Up for AKU Comedy Night in Cambridge, at the snug a.. ...more