ALCAP




ALCAP, the Association pour la Lutte Contre l’Alcaptonurie, is the support group for AKU patients and their families in France.

ALCAP aims to:

  • Provide support to patients and their families

  • Provide information about AKU and educate health professionals

  • Promote medical research

  • Raise funds to achieve these goals

To find out more about ALCAP, visit their website.

ALCAP are a partner in the DevelopAKUre clinical trials, leading on patient support to the French and Belgium patients who are enrolled in the French clinical site at the Hopital Necker in Paris.

Watch this short video created by ALCAP explaining Alkaptonuria, the AKU Society and our DevelopAKUre clinical trials: 




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AKU Blog

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more

Looking forward to 2019
11-Jan-2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more

2018 In Review
04-Jan-2019

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more

DevelopAKUre SONIA 2 - Update
12-Dec-2018

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patie.. ...more