ALCAP, the Association pour la Lutte Contre l’Alcaptonurie, is the support group for AKU patients and their families in France.
ALCAP aims to:
Provide support to patients and their families
Provide information about AKU and educate health professionals
Promote medical research
Raise funds to achieve these goals
To find out more about ALCAP, visit their website.
ALCAP are a partner in the DevelopAKUre clinical trials, leading on patient support to the French and Belgium patients who are enrolled in the French clinical
site at the Hopital Necker in Paris.
Watch this short video created by ALCAP explaining Alkaptonuria, the AKU Society and our DevelopAKUre clinical trials:
The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more
On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more
Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like.. ...more
A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behin.. ...more