DSAKU




DSAKU (Deutschsprachige Selbsthilfegruppe für Alkaptonurie e.V.) is the patient support group for AKU patients and their families in Germany.

DSAKU aim to:

  • Provide up to date information to health professionals, aiming to get earlier diagnosis, better medical care and treatment of AKU patients

  • Bring together AKU patients and their families

  • Provide assistance and advice for AKU patients 

To find out more about DSAKU, visit their website.




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AKU Blog

Meet the patient - Simon Laxon
18-Apr-2019

Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more

Stand Up To AKU 2019!
12-Apr-2019

We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more

Luton Health Awareness Event
05-Apr-2019

On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more

EURORDIS Winter School 2019
29-Mar-2019

In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more