DSAKU (Deutschsprachige Selbsthilfegruppe für Alkaptonurie e.V.) is the patient support group for AKU patients and their families in Germany.
DSAKU aim to:
Provide up to date information to health professionals, aiming to get earlier diagnosis, better medical care and treatment of AKU patients
Bring together AKU patients and their families
Provide assistance and advice for AKU patients
To find out more about DSAKU, visit their website.
Today’s blog is written by AKU patient Simon Laxon. In it, he writes about .. ...more
We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are h.. ...more
On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, .. ...more
In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for t.. ...more