AKU Blog

  • UK Genetic Disorders Leadership Symposium

    Date: 29-Mar-2017

    On Friday 10th and Saturday 11th March Lesley attended the 3rd UK Genetic Disorders Leadership Symposium. The goal of the symposium was to bring together leaders of UK based genetic disorder charities and other patient advocates to learn from experts in the field, ne.. ...more

  • AKU Society's Sixth Patient Workshop

    Date: 22-Mar-2017

    Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue that was well attended by AKU patients and their family members. In this week’s blog, we talk about how the day went. The day started out with smiles and greeting from the AKU team.. ...more

  • London Marathon 2017 - Meet the Runner

    Date: 15-Mar-2017

    The London Marathon is one of the most prestigious running events in the world. This year we are lucky enough to have our very own AKU runner compete in the event. Having reviewed several potential candidates we have decided our runner will be Joe England! We believe Joe is the perfect choice fo.. ...more

  • Rare Disease Day 2017

    Date: 10-Mar-2017

    Every year people from all over the word come together to celebrate Rare Disease Day. A day designed to raise awareness, bring together the community and to highlight some of the fantastic work that is being done in the rare disease area. This year was the day’s 10th anniversary a.. ...more




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AKU Blog

UK Genetic Disorders Leadership Symposium
29-Mar-2017

On Friday 10th and Saturday 11th March Lesley attended the 3rd UK G.. ...more

AKU Society's Sixth Patient Workshop
22-Mar-2017

Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue tha.. ...more

London Marathon 2017 - Meet the Runner
15-Mar-2017

The London Marathon is one of the most prestigious running events in the world. This year we are.. ...more

Rare Disease Day 2017
10-Mar-2017

Every year people from all over the word come together to celebrate Rare Disease Day. A day designed.. ...more

Cambridge Half Marathon 2017
06-Mar-2017

The AKU Society had seven places in this year’s Cambridge Half Marathon. With each of.. ...more