AKU Blog

  • First Children's AKU Workshop

    Date: 08-Aug-2017

    On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they can ex.. ...more

  • Farewell from Rory and Robin

    Date: 25-Jul-2017

    In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures new. They will both be sorely missed by both patients and colleagues alike. Rory I started working for the AKU Society in September last year. The entire.. ...more

  • Meet the patient - Antony Kelly

    Date: 19-Jul-2017

    In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at only a fe.. ...more

  • Farewell from Oliver

    Date: 11-Jul-2017

    Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At the end of this week, he’ll be leaving to move into a new role at Roche but will still be helping rare disease patients to access new treatments. In today’s blog, Oliver talks about what&rs.. ...more




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AKU Blog

First Children's AKU Workshop
08-Aug-2017

On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Z.. ...more

Farewell from Rory and Robin
25-Jul-2017

In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures.. ...more

Meet the patient - Antony Kelly
19-Jul-2017

In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell.. ...more

Farewell from Oliver
11-Jul-2017

Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At t.. ...more

Stand Up For AKU Night 2017
05-Jul-2017

On Thursday, June 29th, Robin and Lesley travelled up to Liverpool for the 2017 Stand Up For AK.. ...more