AKU Blog

  • Duncan's Decade on Nitisinone

    Date: 15-Aug-2018

    The newly published results of a study held at the National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pi.. ...more

  • Stand Up for AKU 2018

    Date: 08-Aug-2018

    We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms (http://theportlandarms.co.uk/wp/#home), Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the.. ...more

  • New Research Shows Nitisinone Treats AKU

    Date: 31-Jul-2018

    New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (http://www.akusociety.org/aku-national-aku-centre.html) (NAC), which gives nitisinone to English and Scottish AKU patients, was ru.. ...more

  • SOFIA-Paediatric: New Research Study

    Date: 25-Jul-2018

    We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust (https://www.childwicktrust.org/). This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in t.. ...more




AKU Twitter

AKU Blog

Duncan's Decade on Nitisinone
15-Aug-2018

The newly published results of a study held at the National Alkaptonuria Centre (http://www... ...more

Stand Up for AKU 2018
08-Aug-2018

We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. Thi.. ...more

New Research Shows Nitisinone Treats AKU
31-Jul-2018

New research has proven for the first time that a drug called nitisinone treats AKU in peopl.. ...more

SOFIA-Paediatric: New Research Study
25-Jul-2018

We have some exciting news. The AKU Society has just been awarded a £60,000 grant .. ...more

Vacancy: Fundraising Officer
18-Jul-2018

We are looking for a Fundraising Officer. The vacancy is up online (http://www.akusociety.org/vac.. ...more