AKU Blog

  • Hannah Shepherd's Everest Story

    Date: 15-Nov-2017

    Here at the AKU Society we are very lucky to have so many talented and dedicated people working in association with us. Hannah Shepherd, of Liverpool John Moores University (https://www.ljmu.ac.uk/), has been the gait analyst for the National Alkaptonuria Centre (https://www.akusoci.. ...more

  • Introducing Reece: Admin and Communications Officer

    Date: 07-Nov-2017

    Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Communications Officer, he will be responsible for the team’s social media output, as well as a lot of our online and print advertising. His job also involves administering our patient communities, r.. ...more

  • A Patient's Perspective: Best Practice 2017

    Date: 03-Nov-2017

    On 18th and 19th October, Lesley, our Patient Support Manager, and Carol, one of our AKU patients, went to the Birmingham NEC to run a stand at Best Practice 2017. In this week’s blog, we find out how they got on. Best Practice – a conference, exhibition and networking even.. ...more

  • Meet Leanne Evans, the NAC's new Data Coordinator

    Date: 25-Oct-2017

    Last Month the National Alkaptonuria Centres' new data controller, Leanne joined the NAC team. Her role will be assisting Hollie with the running of the centre and making sure all information is entered clearly and accurately. In this week’s blog, Leanne tells us a little bit about herself.. ...more




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AKU Blog

Hannah Shepherd's Everest Story
15-Nov-2017

Here at the AKU Society we are very lucky to have so many talented and dedicated people working .. ...more

Introducing Reece: Admin and Communications Officer
07-Nov-2017

Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Commu.. ...more

A Patient's Perspective: Best Practice 2017
03-Nov-2017

On 18th and 19th October, Lesley, our Patient Support Manager, and Carol, one of our AKU pat.. ...more

Meet Leanne Evans, the NAC's new Data Coordinator
25-Oct-2017

Last Month the National Alkaptonuria Centres' new data controller, Leanne joined the NAC team. H.. ...more

A Step for a Step…Everest Base Camp Climb!
12-Oct-2017

So, me (Hannah from the gait lab) and my friend Steven have decided to take on the .. ...more