AKU Blog

  • Scientists for a Day: AKU Outreach in Italy

    Date: 18-Apr-2018

    The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://www.developakure.eu/), the international consortium which we put together in 2012 to find a treatment for AKU. Although there are no clinical trial sites in Italy, some of the most important scientific .. ...more

  • Findacure: Communication and Rare Diseases

    Date: 11-Apr-2018

    There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU. Together, they affect 3.5 million people across the United Kingdom. Each individual disease, though, only has a small patient population. Because of this, doctors, researchers and the public tend to.. ...more

  • SHCA: Our Voice

    Date: 04-Apr-2018

    On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the Specialised Healthcare Alliance (http://www.shca.info/). It was held in the beautiful setting of the House of Lords. Here, Reece explains why he went and what was said. The NHS works thr.. ...more

  • Publicising our Work: Nick Sireau

    Date: 27-Mar-2018

    Dr. Nick Sireau is CEO of the AKU Society and Chair of Trustees. After his two sons were diagnosed with AKU, Nick became a trustee in 2003. He served first as CEO from 2010-2015 but returned to his old job in 2017 after a period at AstraZeneca. It is great having somebody with his experi.. ...more




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AKU Blog

Scientists for a Day: AKU Outreach in Italy
18-Apr-2018

The University of Siena (https://en.unisi.it/) is a valued member of DevelopAKUre (http://ww.. ...more

Findacure: Communication and Rare Diseases
11-Apr-2018

There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU.. ...more

SHCA: Our Voice
04-Apr-2018

On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the.. ...more

Publicising our Work: Nick Sireau
27-Mar-2018

Dr. Nick Sireau is CEO of the AKU Society and Chair of Trustees. After his two sons were.. ...more

Brexit and AKU
14-Mar-2018

In 2019, the AKU Society’s international clinical trial, DevelopAKUre (http://www.developa.. ...more