AKU Blog

  • Edinburgh Half Marathon: Meet The Runner

    Date: 21-Feb-2018

    The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinburgh Half Marathon, part of Edinburgh’s annual Marathon Festival, on 27th May to raise money for us. Jamie lives in the beautiful Scottish town of St. Andrews. He is studying for a master&rsquo.. ...more

  • A Tyrosine Study with Dr. Milad Khedr

    Date: 14-Feb-2018

    Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is studying the effect of nitisinone on the tyrosine levels of AKU patients. Here, we ask him about his work. 1) What is the purpose of this study? Alkaptonuria (AKU) means that.. ...more

  • Browsealoud - A New Accessible Tool For Our Website.

    Date: 07-Feb-2018

    To make our website more accessible to visitors with different needs, the AKU Society has installed support software called Browsealoud (https://www.youtube.com/watch?v=LH7657-xBPI&feature=youtu.be&list=PLvSZbmGbKpCSMfDTIuK7OnBvH5Iy8WskA)from a company called Texthelp (https://www.te.. ...more

  • Meet the Patient - Bob Montague

    Date: 25-Jan-2018

    In this week’s blog, we hear about Bob Montague, who went to the National Alkaptonuria Centre (https://www.akusociety.org/aku-national-aku-centre.html) (NAC) for the first time this January. Now 70 years old, Bob read law at the London School of Economics (http://www.lse.ac.uk/),.. ...more




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AKU Blog

Edinburgh Half Marathon: Meet The Runner
21-Feb-2018

The AKU Society is thrilled to introduce you to Jamie Rumbelow. Jamie is running the Edinbur.. ...more

A Tyrosine Study with Dr. Milad Khedr
14-Feb-2018

Dr. Milad Khedr is a doctor at Royal Liverpool and Broadgreen University Hospitals. He is st.. ...more

Browsealoud - A New Accessible Tool For Our Website.
07-Feb-2018

To make our website more accessible to visitors with different needs, the AKU Society has in.. ...more

Meet the Patient - Bob Montague
25-Jan-2018

In this week’s blog, we hear about Bob Montague, who went to the National Alkaptonuria.. ...more

Two Months (and Three Events) with the AKU Society
16-Jan-2018

In December 2017, Reece Edmends, the AKU Society’s newly appointed Admin and Communication.. ...more