Leave a Gift in Your Will

We know that when it comes to writing your Will your greatest priority will be making sure your loved ones are taken care of. But just a little of what’s left could go a long way to transforming the lives of patients and families affected by AKU, which is why we are asking you to consider leaving a gift in your Will to the AKU Society. 

As a small patient-led charity, any legacy gift, no matter how small or large, will make such a huge difference to our work, as well as being a wonderful way to celebrate your life. Your donation could help our pioneering work continue so future generations of AKU Patients never have to live with the condition’s debilitating symptoms. To find out more about the difference our work makes click here.

Whilst writing your Will can seem like a daunting or unnecessary task, every adult should have one to ensure the right people inherit the right things.  None of us know what is around the corner, so don’t leave it until you need it. In certain circumstances, a gift to the AKU Society may even have the added benefit of helping reduce the inheritance tax levied on the rest of your estate. 


Writing or changing your will is as easy as 1,2,3…

1) Decide to leave a gift to the AKU Society 

2) See a solicitor – it is vital that your Will is drawn up correctly. You can use any Solicitors but we have partnered with McClure Solicitors who have agreed to write your Will or update your existing Will free of charge. You can telephone them on Freephone 0800 8521999, download an information leaflet here, or visit our Free Will Writing Service page. Watch the video below for more information. 

3) Remember you can change your mind at any time, so you can increase or decrease your legacy if your circumstances change. 



Some frequently asked questions – 

What do I need to do before I see the Solicitor?
Nothing, your Solicitor will guide you through the whole process.

I am not sure what the executor does or who to appoint?
Don’t worry, your Solicitor will guide you through the procedure and make suggestions. 

I am not sure what to gift in my Will.
Again, don’t worry as your Solicitor will help you decide. 

I already have a Will. What happens then?
That’s no problem.  Your Solicitor will simply prepare a fresh Will for you to include your legacy. 

What information do I need to include the AKU Society in my Will?
The information you will need is our registered name (The Alkaptonuria Society), our address (66 Devonshire Road, Cambridge, CB1 2BL), and our registered charity number (1101052). 

AKU Twitter

AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more