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Learn more about AKU, its symptoms and treatments

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AKU Blog

Webinar: How to Effectively Communicate With Your Healthcare Providers
24-Aug-2016

In August, rare disease patient advocacy organisation, Global Genes hosted a webinar supporting .. ...more

SHCA: Campaigning for Patients with Complex and Rare Diseases
17-Aug-2016

Over the past month, CiarĂ¡n has travelled to London and Leicester to attend meetings held by the.. ...more

Farewell from Lydia
10-Aug-2016

This week is Lydia's last week at the AKU Society. We are sad to see her go and want to thank he.. ...more

Campaigning for Improvements to Rare Disease Services in Wales
03-Aug-2016

Last week Eve attended a patient group workshop organised by Genetic Alliance UK, which aimed to.. ...more

Developing a Controlled Protein Recipe Booklet to Support our Patients
27-Jul-2016

When AKU patients attend the National AKU Centre (NAC) they are advised to follow a controlled p.. ...more