The Robert Gregory National Alkaptonuria Centre exists to change this. It is needed to ensure that everyone who has AKU has access to a knowledgeable team of specialists who can manage their care efficiently.
The National AKU Centre is a free service in Liverpool funded by the Department of Health, open to anyone over the age of 16 who has been diagnosed with AKU and living in England or Scotland.
Patients who attend the National AKU Centre will receive:
Nitisinone is a drug currently licensed for another rare disease and it is thought to be effective in treating patients with AKU. All patients who attend the National AKU Centre are given access to nitisinone.
If you would like to know more about the National Alkaptonuria Centre, please contact Lesley Harrison by emailing her at [email protected] or giving her a call on 07586759028
You can also download our leaflet on the National Alkaptonuria Centre.
The National AKU Centre (NAC) opened its doors to the first AKU patients back in June 2012. It is now 4 years on and the NAC continues to grow and develop. Our Patient Support Manager, Lesley has been there from the very beginning and remains an inte..Read More >