Lesley Harrison, Patient Support Manager

Meet Lesley, our Patient Support Manager – occasionally referred to as the voice of our patients.

Thanks to funding from the Department of Health Specialised Services Commissioning Group for the National Alkaptonuria Centre in Liverpool, Lesley joined us in May 2012.

Her role includes:

  • Supporting all AKU patients, their families & carers in the UK
  • Supporting all patients on our DevelopAKUre clinical trials
  • Raising awareness of AKU and the National AKU Centre
  • Recruitment for the DevelopAKUre clinical trials
  • Working closely with the team at the National AKU Centre in Liverpool
  • Identifying patients with AKU in the UK and across Europe
  • Liaising and working with GPs and other medical professionals

Lesley trained as a Mental Health Nurse at Long Grove Hospital in Epsom. After staffing in a Mental Health unit in Chesterfield, she completed her post-registration General Nurse training in Leicester. For a time she served in the Queen Alexandra’s Royal Naval Nursing Service where she cared for both civilian and military personnel. It was here she developed a keen interest in offshore sailing and crewed on a number of sailing expeditions in the Solent and Adventurous Sail Training Courses, including the Joint Services Med-Chase in the Eastern Atlantic. She is a qualified Day Skipper. During her time in the Navy, Lesley was given the opportunity to travel as Medical Cover on a Royal British Legion War Graves Pilgrimage to Central Italy.

After leaving the Navy, Lesley has worked professionally within the NHS and private sector in a variety of general and mental health positions. Her extensive experience includes school nursing, evening/night community nursing and as a Practice Nurse in a GP surgery. She was also the Manager of two nursing homes with Granta Housing and Sue Ryder Care.

Most recently, Lesley worked in the charity sector as an Advocate for Voiceability and POhWER, where she supported people with mental health problems and learning difficulties. She worked to ensure they were aware of their rights and empowered them to have a voice. She also worked as an ICAS Advocate, supporting and guiding people through the NHS Complaints Process. In 2012 Lesley completed and was awarded her National Advocacy Qualification.

Outside of work, Lesley is kept busy with her two daughters, chickens and a horse. She has supported her daughters with their interests in horse riding, swimming, triathlon and football. She qualified as a Level 1 Football Coach and helped set up and coach a local girl’s football team. She is a keen Everton supporter and attends games whenever she can.

Lesley is passionate about the human and legal rights of people who may be at a vulnerable point in their lives. She acts as an advocate for our patients ensuring all are treated fairly and their voices are heard, challenging decisions and processes where necessary.


Contact Lesley Harrison

Email: [email protected]
+44(0)7586 759028

AKU Twitter

AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more