Professor Lakshminarayan Ranganath, Trustee




Professor Ranga is a busy full-time consultant in the NHS at Royal Liverpool University Hospital. He was appointed a Professor in Musculo-skeletal Biology in 2012 at the University of Liverpool. There was no NHS service available for rare disease Alkaptonuria in the UK when he developed an interest.

A patient with AKU, Robert Gregory approached Prof. Ranga to establish the AKU Society in 2003, and he remains a founding member, medical director and trustee to this day. At the time he got involved in AKU, systematic assessment of patients with this crippling disease was lacking. Exact numbers of AKU patients were unknown in UK and overseas. There was no effective treatment for AKU. 

To address these issues, he established an NHS Highly Specialised Services funded  National Alkaptonuria Centre (NAC), which is being carried out as a long-term observational interventional study employing off-label use of nitisinone. Prof. Ranga is the inaugural Director of the NAC. Patients in the NAC are able to access nitisinone free of charge and access to a multidisciplinary team of experts. He was also involved in carrying out a national survey that identified 81 UK, 450 European and 1000 patients worldwide. He has pioneered an assessment of AKU patients. 

He is also co-ordinating an EC-funded international research programme that involves 3 studies in AKU. This will bring advances in AKU to all patients with AKU worldwide. In recognition of his contribution to AKU, he was awarded the inaugural 2012 RARE Champion of Hope for Medical Care and Treatment.




AKU Twitter

AKU Blog

Meet Maria - AKU Society Student Placement
23-Aug-2019

Hi! My name is Maria and I am currently a 2nd-year student at Royal Holloway University of L.. ...more

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results
23-Jul-2019

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK
19-Jul-2019

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society
04-Jul-2019

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more