Tony Esmond, Trustee




Born in Pembroke, Tony worked as a nurse in Carmarthen, Brighton and Bridgend before entering senior management in NHS Wales in 1994. After leaving in 1997 for health reasons which he now attributes to AKU, he began a degree in Primary Education in 2000. Upon graduation in 2003 he obtained a teaching post at a primary school in the Vale of Glamorgan.


Sadly, Tony’s AKU escalated and he was forced to stop working in 2016. Tony now spends his retirement serving as a governor in two primary schools, organising a local choir, and enjoying the company of his six grandchildren: Olly, Chloe, Owain, Amelie, Aled and Arthur.






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AKU Blog

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more

RCN Congress May 2019
14-Jun-2019

The Royal College of Nursing (https://www.rcn.org.uk/) (RCN) Congress is the biggest event o.. ...more

AKU Society Brazil - Flavia at the NIH
07-Jun-2019

Today’s blog is written by the head of the Brazilian AKU Society (https://www.akubrasi.. ...more

RE(ACT) Congress America 2019 - Toronto
24-May-2019

This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown .. ...more

Donating to us via Facebook
03-May-2019

Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people o.. ...more