Tony Esmond, Trustee




Born in Pembroke, Tony worked as a nurse in Carmarthen, Brighton and Bridgend before entering senior management in NHS Wales in 1994. After leaving in 1997 for health reasons which he now attributes to AKU, he began a degree in Primary Education in 2000. Upon graduation in 2003 he obtained a teaching post at a primary school in the Vale of Glamorgan.


Sadly, Tony’s AKU escalated and he was forced to stop working in 2016. Tony now spends his retirement serving as a governor in two primary schools, organising a local choir, and enjoying the company of his six grandchildren: Olly, Chloe, Owain, Amelie, Aled and Arthur.






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AKU Blog

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more

Cambridge Half Marathon 2019: On the Day
08-Mar-2019

Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They rai.. ...more

Cambridge Half Marathon 2019: Meet the Runners
22-Feb-2019

The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roa.. ...more

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more