RCGP Online Learning Module

Patients with alkaptonuria (AKU) often struggle to get a diagnosis due to lack of awareness. Many of our patients are misdiagnosed multiple times and have to wait years before they finally get a correct diagnosis. This can be very stressful and upsetting for patients and as they get older, symptoms tend to be more severe and difficult to manage. There may be many more patients out there who are still waiting for a diagnosis.



This is why we have partnered up with the Royal College of General Practitioners (RCGP) to develop an online learning module all about AKU. The module is aimed at GPs and healthcare professionals to increase awareness of AKU and ultimately improve diagnosis. 

Anyone can access the module to learn more about AKU. All you have to do is create a free account with RCGP and you can access the module here. GPs get CDP credits for taking the module and nurses can put it towards their continued professional development as part of their revalidation. 

In the video below, AKU patients, Ann and Rosie and GP, Ian share their AKU journeys and explain why it is so important to diagnose AKU early:

 

 

 

     




AKU Twitter

AKU Blog

RCN Congress 2017
25-May-2017

The Royal College of Nursing Congress is held each year to bring together over 4,000 nurses .. ...more

The Information Standard
17-May-2017

The AKU Society is excited to announce that we are now accredited members of the Information Sta.. ...more

Engaging Your Community For Fundraising
10-May-2017

On April 28th our Admin & Events Officer Robin gave a presentation on local com.. ...more

London Marathon 2017
05-May-2017

On 23rd April Joe England successfully completed the London Marathon on behalf of the AKU Societ.. ...more

UK Genetic Disorders Leadership Symposium
29-Mar-2017

On Friday 10th and Saturday 11th March Lesley attended the 3rd UK G.. ...more