Treatment

AKU can be treated using the drug nitisinone. Our seven year DevelopAKUre study, which concluded in 2020, illustrated nitisinone effectively halts the build of homogentisic acid (HGA) by 99%. Nitisinone received a marketing authorisation from the European Medicines Agency (EMA) and is now available to patients across Europe. Patients in the UK can access nitisinone treatment by attending the National AKU Centre (NAC).

AKU can also be treated through a number of self-management techniques including exercise and pain management.

Nitisinone

Nitisinone is a life-changing treatment which reduces the acid which causes AKU by 99%...

Diet

Patients who are not taking nitisinone should not change their diet without consulting their doctor...

National AKU Centre

The NAC is a free NHS service providing treatment and support to AKU patients in England and Scotland...

Self Management

Joint pain is a serious and debilitating symptom of AKU...