AKU Blog

  • Luton Health Awareness Event

    Date: 05-Apr-2019

    On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start (https://www.flyingstartluton.com/) and Public Health Luton worked in partn.. ...more

  • EURORDIS Winter School 2019

    Date: 29-Mar-2019

    In today's blog, CEO and Chair Nick Sireau tells us about his recent trip to Paris for the European Organisation for Rare Diseases Winter School. A major player in the world of rare diseases is EURORDIS (https://www.eurordis.org), the European Organisation for Rare Diseases. .. ...more

  • Rare Disease Day 2019

    Date: 14-Mar-2019

    Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events happening internationally. The AKU S.. ...more

  • Cambridge Half Marathon 2019: On the Day

    Date: 08-Mar-2019

    Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They raised a remarkable combined total of £651.82. Our fundraising officer, Juliet, was there on the day and told us more about how the day went. Unfortunately, it was a cold and wet day for our .. ...more

AKU Twitter

AKU Blog

DevelopAKUre - A History

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more

Stand Up To AKU Comedy Night - Liverpool 2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more