AKU Blog

  • RE(ACT) Congress America 2019 - Toronto

    Date: 24-May-2019

    This week's blog is written by AKU Society CEO Nick Sireau. Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress (https://www.react-congress.org/), set up by Dr Olivier Menzel and his B.. ...more

  • Donating to us via Facebook

    Date: 03-May-2019

    Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog, we will be giving you som.. ...more

  • Stand Up to AKU Comedy Night 2019 - Raffle Prizes!

    Date: 25-Apr-2019

    Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fantastic comedy acts performing at the Hot Water Comedy Club (https://www.hotwatercomedy.co.uk/) in the centre of Liverpool. The fabul.. ...more

  • Meet the patient - Simon Laxon

    Date: 18-Apr-2019

    Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him. Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to feeling .. ...more




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RCNi eLearning Module
13-Dec-2019

Five years ago, we partnered with the Royal College of GPs (RCGP) to develop an online eLearning.. ...more

AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more