AKU Blog

  • Findacure Workshop - Managing a Small Rare Disease Patient Group

    Date: 17-Oct-2014

    On 12th September, Findacure held a workshop at the Royal College of Nursing in London on how to manage a small rare diseases patient group. (http://www.findacure.org.uk)Our own CEO and Chairman, Nick Sireau, spoke on his experience managing the AKU Society. In this week’s blog we he.. ...more

  • Katie's Cardiff Half Marathon

    Date: 14-Oct-2014

    On Sunday 5th October Katie ran the Cardiff Half Marathon to raise money for the AKU Society. She decided to do this in support of her Dad, who has AKU. Not only did she beat her fundraising target, she also beat her personal best time in the race! In this week’s blog she tells us all abou.. ...more

  • The British Society of Genetic Medicine Conference 2014

    Date: 08-Oct-2014

    On 22nd-24th September Lesley, our Patient Support Manager, and Alistair, the Coordinator at the National AKU Centre in Liverpool, attended the British Society of Genetic Medicine (BSGM) Conference in Liverpool. This week we look at how the conference went, and examine the importance of attendin.. ...more

  • Farewell from Hana

    Date: 24-Sep-2014

    This Friday will be our Clinical Trial Coordinator, Hana’s last day at the AKU Society. In this week’s blog post, Hana has answered questions from the rest of the team about her time at the AKU Society and her plans for the future. What’s your AKU story? I first heard.. ...more




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RCNi eLearning Module
13-Dec-2019

Five years ago, we partnered with the Royal College of GPs (RCGP) to develop an online eLearning.. ...more

AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more