Resources


This page provides resources for AKU patients, carers and their families. The information on this page includes leaflets about AKU and our services, impact reports, newsletters and presentations from our patient workshops.

An Introduction to Alkaptonuria (AKU) - Children's Booklet An Introduction to Alkaptonuria (AKU) - Children's Booklet (4459 KB)

AKU Society Leaflets

We regularly produce leaflets with the latest information about services available for AKU patients and carers. Please check back regularly for new leaflets and information.

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The AKU Society - printable The AKU Society - printable (1703 KB)

What is Alkaptonuria - Printable What is Alkaptonuria - Printable (2208 KB)

How AKU is Inherited printable How AKU is Inherited printable (922 KB)



Polish versions 

anintroduction to aku -pl anintroduction to aku -pl (3125 KB)

How AKU is Inherited-pl How AKU is Inherited-pl (2226 KB)

The AKU Society-pl The AKU Society-pl (4492 KB)


What is Alkaptonuria v2-pl What is Alkaptonuria v2-pl (4865 KB)



Punjabi Versions 

AKU Guide 2017 A5 Punjabi AKU Guide 2017 A5 Punjabi (3171 KB)


How AKU is Inherited Punjabi How AKU is Inherited Punjabi (2245 KB)


The AKU Society Punjabi The AKU Society Punjabi (4517 KB)


What is Alkaptonuria v2 Punjabi What is Alkaptonuria v2 Punjabi (4884 KB)



Urdu Versions 

AKU Guide 2017 A5 Urdu AKU Guide 2017 A5 Urdu (4268 KB)


How AKU is Inherited Urdu How AKU is Inherited Urdu (2274 KB)


The AKU Society Urdu The AKU Society Urdu (4531 KB)


What is Alkaptonuria Urdu What is Alkaptonuria Urdu (4914 KB)





Welsh Versions 

AKU Guide 2017 A5-cy AKU Guide 2017 A5-cy (3143 KB)


How AKU is Inherited-cy How AKU is Inherited-cy (2226 KB)


The AKU Society-cy The AKU Society-cy (4489 KB)


What is Alkaptonuria v2-cy What is Alkaptonuria v2-cy (4862 KB)



Gujarati Versions 

AKU Guide 2017 A5 Gujarati AKU Guide 2017 A5 Gujarati (3221 KB)


How AKU is Inherited Gujarati How AKU is Inherited Gujarati (2290 KB)


The AKU Society Gujarati The AKU Society Gujarati (4497 KB)


What is Alkaptonuria v2 Gujarati What is Alkaptonuria v2 Gujarati (4941 KB)



Hindi Versions 

AKU Guide 2017 A5 - Hindi AKU Guide 2017 A5 - Hindi (3254 KB)

How AKU is Inherited - Hindi How AKU is Inherited - Hindi (2295 KB)


The AKU Society -Hindi The AKU Society -Hindi (4554 KB)


What is Alkaptonuria - Hindi What is Alkaptonuria - Hindi (4952 KB)



Impact report 2017

Our 2017 Impact Report showcases our work and highlights our key achievements:

AKUS impact 2017 AKUS impact 2017 (13019 KB)




Newsletters

We post regular newsletters to our UK supports, keeping them updated on our news and work. You can access our most recent newsletters below:

Spring Newsletter 2017 Spring Newsletter 2017 (1901 KB)





AKU Twitter

AKU Blog

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more

Cambridge Half Marathon 2019: On the Day
08-Mar-2019

Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They rai.. ...more

Cambridge Half Marathon 2019: Meet the Runners
22-Feb-2019

The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roa.. ...more

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more