SUBSCRIBE TO OUR NEWSLETTER 
The first symptom most AKU patients will experience is black or dark urine. Large quantities of HGA is excreted in the urine. If left to stand and exposed to the air, the urine will oxidise and start to turn black. The length of time needed for the urine to turn black can vary from patient to patient but nearly all patients’ urine will eventually turn black.
Black urine does not cause any physical harm, however it can be used as a diagnostic tool. Babies born with AKU may have a dark or red staining in their nappy as a result of HGA in the urine. Doctors should then carry out a urine or blood test to check the level of HGA in the baby’s body in order to confirm a diagnosis of AKU. 1
Published: 24.07.16 Next Review Date: 24.07.19
Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more
We are delighted to announce that all the data from the SONIA 2 clin.. ...more
My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more
In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more
Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more
