Where your Money Goes

Donations of every size help the AKU Society to continue its support of AKU Patients, whilst searching for a cure.


In the last financial year we had an expenditure of £229,248.

£160,957 went on our research, working towards our ultimate goal of curing AKU.

£58,608 was spent on patient support, helping those who are affected by AKU.

Thank you to everyone who has donated, past and present. Without such generosity we wouldn’t be able to continue our work.

See our full accounts for 2016 here: http://apps.charitycommission.gov.uk/Accounts/Ends52/0001101052_AC_20160630_E_C.PDF






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AKU Blog

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results
23-Jul-2019

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK
19-Jul-2019

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society
04-Jul-2019

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more