Our Funders


We would like a say a huge thank you to the trusts and foundations below for supporting our work.

 - Online project. Overcoming the lack of information for AKU Patients. 



        - DevelopAKUre project. Our clinical trial into the drug nitisinone.    

     


- Patient support before, during and after NAC clinics

   - Breaking Down Barriers Project. Overcoming barriers to information. 


 - Research funding at the University of Liverpool and Lancaster University.


          - Funding towards our first Children’s workshop.




The Strangward Trust
- Continuation of our BLF project, “Reaching Communities”.

 


The Hedley Foundation- Funding towards our first Children’s workshop.



   - Reaching Communities.



The Albert Hunt Trust- Funding towards an adult workshop.



  - Adult workshop.



The Constance Travis Charitable Trust- General funds.



  - International AKU Patient Workshop and AKU Childrens book


  - Funding for a 2017 AKU Dietary Advice 


  - Supporting AKU patients in Bedfordshire


 - Provided us with a free bannerstand. 









AKU Twitter

AKU Blog

Rare Disease Day 2019
14-Mar-2019

Rare Disease Day is an international day designed to raise awareness to the public and those.. ...more

Cambridge Half Marathon 2019: On the Day
08-Mar-2019

Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They rai.. ...more

Cambridge Half Marathon 2019: Meet the Runners
22-Feb-2019

The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roa.. ...more

Final meeting of DevelopAKUre and the 11th Scientific workshop on AKU – Siena 2019
15-Feb-2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena.. ...more

SONIA 2 - Last patients
22-Jan-2019

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients.. ...more