AKU Society APAC




The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families in the Asia-Pacific region.

They are currently focused on bringing together all those associated with AKU in the region, with a longer-term goal of improving the quality of life of AKU patients and their families, through providing resources and channels of interaction. 

In APAC, while general awareness of AKU is low, there is a small but growing community - more than 120 patients. If you are an AKU patient, family member, friend, or healthcare professional associated with AKU patients, please contact [email protected] to join the community! 

They are also always looking for people to volunteer. If you are interested in helping out in any way, please contact [email protected].




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AKU Blog

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results
23-Jul-2019

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK
19-Jul-2019

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society
04-Jul-2019

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more