DSAKU




DSAKU (Deutschsprachige Selbsthilfegruppe für Alkaptonurie e.V.) is the patient support group for AKU patients and their families in Germany.

DSAKU aim to:

  • Provide up to date information to health professionals, aiming to get earlier diagnosis, better medical care and treatment of AKU patients

  • Bring together AKU patients and their families

  • Provide assistance and advice for AKU patients 

To find out more about DSAKU, visit their website.




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AKU Blog

DevelopAKUre - A History
02-Aug-2019

Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in.. ...more

SONIA 2 and DevelopAKUre - Results
23-Jul-2019

We are delighted to announce that all the data from the SONIA 2 clin.. ...more

Sociological Study on Treatment for AKU in the UK
19-Jul-2019

My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK hea.. ...more

Other Ways to Give to the AKU Society
04-Jul-2019

In this week’s blog, we explain how you can donate to the AKU Society through mobile g.. ...more

Stand Up To AKU Comedy Night - Liverpool 2019
20-Jun-2019

Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Wate.. ...more