Patients Know Best




Patients Know Best is an online forum, allowing patients access to their medical records. 

With Patients Know Best, you must be invited to join because it is because it's a password protected community with secure information being shared. When patients attend the National Alkaptonuria Centre (NAC), they are invited to join Patients Know Best. This then allows them access to their records from their time at the NAC in Liverpool. 

Patients using the site can discuss their results and records from the NAC with the doctors and clinicians they deal with at the Centre, as well as our Patient Support Manager, Lesley. We have received great feedback from patients about this, who feel empowered by being able to access their own test results and records at ease online. 

Patients Know Best makes contacting doctors and clinicians easy and quick. Patients using the forum choose who they share their information with, and can change this at anytime. 

If you're going to be attending the NAC in Liverpool, you can look forward to joining the forum. 

Have a look at the website by clicking the button below. 

 




AKU Twitter

AKU Blog

RCNi eLearning Module
13-Dec-2019

Five years ago, we partnered with the Royal College of GPs (RCGP) to develop an online eLearning.. ...more

AKU Patient Workshop 2019 - Garrod Day Special
05-Dec-2019

In today’s blog, we look at our brilliant patient workshop held in Liverpool on the 25th Novem.. ...more

Eurordis Digital School & RCGP Annual Primary Care Conference 2019
08-Nov-2019

Eurordis Digital School At the start of the month Ciarán our Communications Manager .. ...more

One Month to Go until Garrod Day!
25-Oct-2019

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Si.. ...more

Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
27-Sep-2019

We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November... ...more